Hello Lewy Warriors!
It's the end of another month and, as promised, we have LOTS of news to share. We hope everyone had a wonderful April. The warm weather is just around the corner and we can't wait for summer.
First and foremost, we've updated the "LBD Resources" page of our website throughout the month and added a bunch of great links, articles, and new LBD-related books (including the latest release from our friend and Lewy Warrior J.J. Johnstone). We will be adding more to the site in the coming months and I suggest you check back regularly. We always welcome new suggestions and encourage people to send us anything you feel that should be on the page or things that we may have missed via our website's contact boxes, Facebook, or email.
Now, on to the exciting stuff! We are thrilled to announce our first Summer event - "The P.E.I. Project"! Our founder Carol is going to be walking P.E.I.'s answer to the El Camino trail in Spain to raise funds for and awareness about Lewy Body Dementia! She will be travelling solo and updating us every few days with pictures, stories, and news from the trail that we will be sharing online for everyone to see. The whole event will be a month-long trek across the island from June 1st until July 2nd.
Instead of creating a Gofundme or other online fundraiser, Carol would prefer that donations be made to Dr. Pasternak's LBD Research at University of Western Ontario via their direct donation (you can do so here). Ashely, our fantastic liaison at UWO will be updating us every two weeks with our new donation total so that we can track what we've raised from today onwards. Over the next week or two, more information will become available on our website and Facebook pages, including a digital flyer with a QR code that links directly to the donation site. This is a huge undertaking and we're so excited and proud of Carol. We hope everyone will share our updates and promotional materials far and wide to show her how much we support her and everyone else who has been affected by Lewy Body Dementia.
Because of this, we will also be launching our Instagram account this month! We havre plans to branch out to other social media platforms in the coming months and to release more original videos on our YouTube channel. Please consider subscribing if you're interested in more great content. We've got lots in the works. We are also looking at hosting or being a part of more community events over the summer and into the fall. More information will be coming your way soon but, for now, our focus is on this walk.
We wanted to thank everyone who follows us or has joined our cause over the last few years and we can't wait to see what the summer months bring. We have a wonderful growing community and, although we are "small potatoes" as Carol always says, we can see that we are making some actual change and helping in the race to better understand LBD. We're hoping to pass some major milestones by the end of the summer but we can't do it without your help. Every donation, like, share, comment... it all helps! No matter how small.
That's all for today! Keep an eye out for more info on "The P.E.I. Project" and our new social media links!
The CLBDI blog is run by Advisory Board member Joseph Daniel.