The CLBDI Community Hub
Welcome to the CLBDI community page! This is where you will find all of our communal links, conversation, shared stories and our social media feeds. It will be an organic endeavour that will be constantly shifting as we grow. We wanted to create a place where you can catch up on all things CLBDI and join the conversation. This page is for everyone who visits the site to share. Furthermore, this page is a safe and supportive space where people can connect and share their experiences as a community. It will be monitored and moderated to ensure kindness, civility and open discussion.
We will also be sharing all of our social media feeds and information on what's happening with CLBDI both online and in our city. We are aware that some people do not use social media so we wanted to create an online space that allows you to follow us and join in the conversation without needing to create an account. If you do use social media, please consider giving us a follow on our various pages and accounts.
We will also be sharing all of our social media feeds and information on what's happening with CLBDI both online and in our city. We are aware that some people do not use social media so we wanted to create an online space that allows you to follow us and join in the conversation without needing to create an account. If you do use social media, please consider giving us a follow on our various pages and accounts.
The CLBDI Facebook Page
Direct Link - https://www.facebook.com/CanadianLBDInfo/
The CLBDI Instagram Feed
Current Fundraisers and Events
TBA
CLBDI Merchandise
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The New CLBDI Holiday Cards
We're excited to introduce a new collection of cards based on some of the artwork from our online art shows! These are totally unique and make a great Christmas, birthday, or holiday card. Each of the cards features artwork from our founder, Carol Schmidt, and half of every dollar raised will go to Dr. Pasternak's LBD research at UWO. The inner pages are blank and can be customized whichever way works best for you.
Cards can be purchased in packs of four for $20 or individually for $5 plus a small local delivery or shipping.
To place an order, use the contact box below.
Please include your order, your preferred method of delivery, and your contact information.
We take e-transfer or cash upon delivery. Limited pick-up hours are also available.
We're excited to introduce a new collection of cards based on some of the artwork from our online art shows! These are totally unique and make a great Christmas, birthday, or holiday card. Each of the cards features artwork from our founder, Carol Schmidt, and half of every dollar raised will go to Dr. Pasternak's LBD research at UWO. The inner pages are blank and can be customized whichever way works best for you.
Cards can be purchased in packs of four for $20 or individually for $5 plus a small local delivery or shipping.
To place an order, use the contact box below.
Please include your order, your preferred method of delivery, and your contact information.
We take e-transfer or cash upon delivery. Limited pick-up hours are also available.
Canadian Lewy Body Dementia Modern Red T-Shirt - $20 + Shipping or $5 Delivery Fee.
Sizes small to 2XL are available.
We are proud to announce the first run of our CLBDI merchandise! Support CLBDI and LBD research while looking good in our fresh and modern design. You'll be happy to know that $10 of every shirt sold goes to Dr. Pasternak's LBD research!
To order, fill out the form below with your desired design, size(s) and delivery/mail information.
We take e-transfer or cash upon delivery. Limited pick-up hours are also available.
Sizes small to 2XL are available.
We are proud to announce the first run of our CLBDI merchandise! Support CLBDI and LBD research while looking good in our fresh and modern design. You'll be happy to know that $10 of every shirt sold goes to Dr. Pasternak's LBD research!
To order, fill out the form below with your desired design, size(s) and delivery/mail information.
We take e-transfer or cash upon delivery. Limited pick-up hours are also available.
Join the Conversation
Take some time to tell us your story, share your experiences, share some LBD resources or just say "hi".
Whatever is on your mind, we want to hear from you.
Whatever is on your mind, we want to hear from you.
Previous CLBDI Events
The P.E.I. Project
Unfortunately, due to injury, the walk across P.E.I. is now over. Here are some words of gratitude from our founder:
"To my friends and supporters,
I would like to take a moment to thank everyone who helped me after I injured myself on the trail.
First to thank is Jean McCardle, my bed and breakfast host, who lives in the charming Victoria-by-the Sea. I spent many days with her. She is a wonderful woman. During my stay, she kept an eye on me, shared her wonderful company, found a massage therapist for me, and took me to some very interesting venues.
Also, a major thanks to Mr. Kendrick of Island Experiences and drivers Ann and Bill Jamieson who were most helpful.
Here in Waterloo, I would like to thank my health team who saw me this past Monday and Tuesday. Thank you to my excellent MT Steve Foley, my chiropractor Dr. K. Moeller, and Dr. M. Torreiter who did acupuncture on me and set me up with Eric Bauman for the afternoon. He is my physiotherapist. I will continue to see them in the next few weeks until I am healed.
I also want to thank the 3 sets of folks, two in PEl and one here, who gave me cash donations for the fundraiser after I had injured myself. I am so, so grateful for your kindness. Merci Mille Fois.
Thanks to Dr. S. Pasternak, as well, for emailing me to lend his support regarding my injury.
Upon arriving home, I was diagnosed with Gluteal Tendinopathy in my hip. I will have to take the utmost care to adhere to the program Eric set out for me so that I can heal. He said it can take anywhere from a month to three months for complete healing. My movement is limited but I can still do short, light swims and two short walks daily at a “moseying” pace.
I will continue to work on healing this ol' left hip of mine so that I can hopefully walk some in our local area as an alternative in the future.
I also want to thank my amazing LBD partner, Joe Daniel, for his constant support as well as members of my family and all my wonderful friends.
As ever,
Carol"
Instead of creating an online fundraiser, Carol hopes you will donate to Dr. Pasternak's LBD research at UWO. We will be updating our donation totals bi-weekly throughout May and June, so there is still time to show your support.
You can donate to LBD research in Ontario by clicking here.
"To my friends and supporters,
I would like to take a moment to thank everyone who helped me after I injured myself on the trail.
First to thank is Jean McCardle, my bed and breakfast host, who lives in the charming Victoria-by-the Sea. I spent many days with her. She is a wonderful woman. During my stay, she kept an eye on me, shared her wonderful company, found a massage therapist for me, and took me to some very interesting venues.
Also, a major thanks to Mr. Kendrick of Island Experiences and drivers Ann and Bill Jamieson who were most helpful.
Here in Waterloo, I would like to thank my health team who saw me this past Monday and Tuesday. Thank you to my excellent MT Steve Foley, my chiropractor Dr. K. Moeller, and Dr. M. Torreiter who did acupuncture on me and set me up with Eric Bauman for the afternoon. He is my physiotherapist. I will continue to see them in the next few weeks until I am healed.
I also want to thank the 3 sets of folks, two in PEl and one here, who gave me cash donations for the fundraiser after I had injured myself. I am so, so grateful for your kindness. Merci Mille Fois.
Thanks to Dr. S. Pasternak, as well, for emailing me to lend his support regarding my injury.
Upon arriving home, I was diagnosed with Gluteal Tendinopathy in my hip. I will have to take the utmost care to adhere to the program Eric set out for me so that I can heal. He said it can take anywhere from a month to three months for complete healing. My movement is limited but I can still do short, light swims and two short walks daily at a “moseying” pace.
I will continue to work on healing this ol' left hip of mine so that I can hopefully walk some in our local area as an alternative in the future.
I also want to thank my amazing LBD partner, Joe Daniel, for his constant support as well as members of my family and all my wonderful friends.
As ever,
Carol"
Instead of creating an online fundraiser, Carol hopes you will donate to Dr. Pasternak's LBD research at UWO. We will be updating our donation totals bi-weekly throughout May and June, so there is still time to show your support.
You can donate to LBD research in Ontario by clicking here.
"The Second CLBDI Online Art Show" & Live CLBDI Event at Three Sisters Cultural Centre - Online and In-Person Art Show and Fundraiser - July to October, 2022
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Summary coming soon.
"Our Emotional Journey With Lewy Body Dementia" - Online Art Show and Fundraiser - March 26th to April 30th, 2021
Artist's Statement
I began this project in 2019, though it had many stops and starts. This project was a way for me to process what had happened and how Lewy Body Dementia was destroying my beloved husband Bob’s brain. I also needed to wrestle with my own emotions and help my husband as the disease ravaged his brain and body. He, however, taught us so much whilst battling LBD. Dignity, grace and humour were his constant companions. I also learned to endure as he did. After his death on Feb.8th, 2020, the last 5 paintings helped me work through the pain of loss, anger, disbelief, bewilderment and a whole host of other emotions which came in waves and, at other times, were fleeting.
I love to paint; it is my go-to art form. I love the colours, the challenges of bringing what I feel, observe and think to the canvas. I hope these paintings will allow others to know the effect and affect of this terrible disease and how Lewy Body Dementia affects the entire family.
I dedicate this project to My Lewy Warrior; Bob and all those who have and are battling LBD.
I also dedicate this project to all the excellent medical folks who are caring for LBD patients and doing so much LBD for research.
Last, but never least, I dedicate this project to family and all those on my Lewy Body Dementia team.
Thank you.
I love to paint; it is my go-to art form. I love the colours, the challenges of bringing what I feel, observe and think to the canvas. I hope these paintings will allow others to know the effect and affect of this terrible disease and how Lewy Body Dementia affects the entire family.
I dedicate this project to My Lewy Warrior; Bob and all those who have and are battling LBD.
I also dedicate this project to all the excellent medical folks who are caring for LBD patients and doing so much LBD for research.
Last, but never least, I dedicate this project to family and all those on my Lewy Body Dementia team.
Thank you.
Reviews and Comments
Alan Daniel (Visual Artist)
"Carol has been a valued student and friend for years. I admire what she has accomplished by mounting this show and by successfully expressing, through her art, the depth of emotion involved in supporting her soul mate through his difficult journey."
Podi Lawrence (Visual Artist)
"I first met Carol & Bob 2000 after I moved to Canada from the UK. She attended one of my classes and I have seen her grow as an artist since then. These latest paintings say so much about the agonizing years that she has recently gone through. Painting is a beautiful way to deal with stress. I look forward to seeing her future work as she comes out of the pain barrier. Hopefully we will meet again when we have learnt to cope with the Pandemic. Love."
Merlin McRae
"Carol what a wonderful tribute to Bob. Your work is very inspirational."
Jennifer Chanter
"Deeply emotional and powerfully created. Your work has deeply touched my soul. I now have so much more understanding of this dreadful disease. A picture is worth a thousand words."
Lorraine
"Dear Carol, thank you for inviting me to view your art show and continuing to educate me about Lewy Body Dementia. The art pieces powerfully depicted their titles. All different with a wide range of colour and intensity."
Bonnie Cole Arnal
"Dear Carol, these paintings are a testimony to your courage, creativity and resilience. Thank you for sharing your journey and for all your work to support others who may be on a similar journey."
Savio Wong
"These are beautiful, Carol. I could sense the love through your art. I am sure Bob is smiling from above with proud and approval."
Caitlin S
"As a young artist, Carol's art inspires and moves me. I love her use of colour. I am lucky to have been given a few pieces that I love. Thank you for your passion and support in my own artistic journey. Much Love!"
Sandra Simpson
"What I love most about these works of art is the love that goes into them. I have seen Carol in action and from start to finish the positive energy, thought and passion flows freely. Grateful to know that Bob's legacy is engrained into each piece she creates."
Charles Payette
"Dear Carol, such thought provoking work. I never would have considered some of these emotions yet visually each emotion is completely understandable. I love Grace. This has been such a long journey for you."
Penny MacVicar
"Dear Carol, Beautiful. What a wonderful talent and medium to use to express all the emotions I know you have gone through in this long hard journey. My congratulations on all you have accomplished and will for the LBD forum though."
Erlma Schaus
"Being able to express your emotions through your inspirational paintings is truly a blessing. Thank you for sharing."
Thea Trussler
"Gorgeous and emotive, dear Carol... you capture so much of the journey one experiences when the long process of grief from diagnosis to "graduation". Bless you and the love you still hold for your beloved Bob."
Beth Vonnahme
"Thank you Carol, my husband and I are on the LBD road, we're not exactly sure where we are but....what a journey! Your paintings speak volumes more than words. God Bless you for your love and dedication to those of us coming behind you. I encourage you to consider having giclee's made and offering this to the American LBDA website as well."
Annie Griffin
"I can feel the emotions coming through your work, Carol. I will be sending a link to a friend whose husband is battling LBD. I'm sure she will totally "get" your paintings. Hugs."
Jen Schmidt
"Lovely paintings Carol! They truly capture the journey of the mind through all of this. Well done."
Barbara Hull
"Carol your artwork is a true reflection of your emotions."
Steven D. Foley (RMT)
"Awesome work Carol - the emotions really show through! Thank you for sharing your amazing work!"
Bob Ballantyne
"Nicely done Carol -- a real tribute the journey that you and Bob have made. I can identify with the feelings in each painting, but the two that hit home the most are Courage and Grace, as that is what my wonderful wife (Denise) is showing me."
Kurt
"Beautifully rendered emotions... a bridge to your journey."
Andy Schmidt
"Amazing and moving. They capture the feelings and emotions of a journey through the battle against LBD."
Ashley Irvine
"Carol, these are so beautiful and moving. You are so talented! Thank you for sharing these with us!"
Steve Schmidt
"Powerful images. some hit so close to home. Thank you for sharing Carol."
Carly Leyburne
"Carol, these images are powerful and I'm so grateful that I got to witness them! Beautiful and emotive work... You give us the chance to feel along with you. Thank you."
Marion Richardson
"So powerful, Carol. Thank you for expressing those personal emotions in a visual form. They truly are relatable to to great losses which we all experience in life. Namaste."
Ilsedore Kautsky
"Amazing emotional and artistic statements which anyone can relate to while with reflecting on their own situation."
Larry
"Very strong, emotional works. I can sense the pain, anger, loss, loneliness, the love and dignity you are expressing."
"Carol has been a valued student and friend for years. I admire what she has accomplished by mounting this show and by successfully expressing, through her art, the depth of emotion involved in supporting her soul mate through his difficult journey."
Podi Lawrence (Visual Artist)
"I first met Carol & Bob 2000 after I moved to Canada from the UK. She attended one of my classes and I have seen her grow as an artist since then. These latest paintings say so much about the agonizing years that she has recently gone through. Painting is a beautiful way to deal with stress. I look forward to seeing her future work as she comes out of the pain barrier. Hopefully we will meet again when we have learnt to cope with the Pandemic. Love."
Merlin McRae
"Carol what a wonderful tribute to Bob. Your work is very inspirational."
Jennifer Chanter
"Deeply emotional and powerfully created. Your work has deeply touched my soul. I now have so much more understanding of this dreadful disease. A picture is worth a thousand words."
Lorraine
"Dear Carol, thank you for inviting me to view your art show and continuing to educate me about Lewy Body Dementia. The art pieces powerfully depicted their titles. All different with a wide range of colour and intensity."
Bonnie Cole Arnal
"Dear Carol, these paintings are a testimony to your courage, creativity and resilience. Thank you for sharing your journey and for all your work to support others who may be on a similar journey."
Savio Wong
"These are beautiful, Carol. I could sense the love through your art. I am sure Bob is smiling from above with proud and approval."
Caitlin S
"As a young artist, Carol's art inspires and moves me. I love her use of colour. I am lucky to have been given a few pieces that I love. Thank you for your passion and support in my own artistic journey. Much Love!"
Sandra Simpson
"What I love most about these works of art is the love that goes into them. I have seen Carol in action and from start to finish the positive energy, thought and passion flows freely. Grateful to know that Bob's legacy is engrained into each piece she creates."
Charles Payette
"Dear Carol, such thought provoking work. I never would have considered some of these emotions yet visually each emotion is completely understandable. I love Grace. This has been such a long journey for you."
Penny MacVicar
"Dear Carol, Beautiful. What a wonderful talent and medium to use to express all the emotions I know you have gone through in this long hard journey. My congratulations on all you have accomplished and will for the LBD forum though."
Erlma Schaus
"Being able to express your emotions through your inspirational paintings is truly a blessing. Thank you for sharing."
Thea Trussler
"Gorgeous and emotive, dear Carol... you capture so much of the journey one experiences when the long process of grief from diagnosis to "graduation". Bless you and the love you still hold for your beloved Bob."
Beth Vonnahme
"Thank you Carol, my husband and I are on the LBD road, we're not exactly sure where we are but....what a journey! Your paintings speak volumes more than words. God Bless you for your love and dedication to those of us coming behind you. I encourage you to consider having giclee's made and offering this to the American LBDA website as well."
Annie Griffin
"I can feel the emotions coming through your work, Carol. I will be sending a link to a friend whose husband is battling LBD. I'm sure she will totally "get" your paintings. Hugs."
Jen Schmidt
"Lovely paintings Carol! They truly capture the journey of the mind through all of this. Well done."
Barbara Hull
"Carol your artwork is a true reflection of your emotions."
Steven D. Foley (RMT)
"Awesome work Carol - the emotions really show through! Thank you for sharing your amazing work!"
Bob Ballantyne
"Nicely done Carol -- a real tribute the journey that you and Bob have made. I can identify with the feelings in each painting, but the two that hit home the most are Courage and Grace, as that is what my wonderful wife (Denise) is showing me."
Kurt
"Beautifully rendered emotions... a bridge to your journey."
Andy Schmidt
"Amazing and moving. They capture the feelings and emotions of a journey through the battle against LBD."
Ashley Irvine
"Carol, these are so beautiful and moving. You are so talented! Thank you for sharing these with us!"
Steve Schmidt
"Powerful images. some hit so close to home. Thank you for sharing Carol."
Carly Leyburne
"Carol, these images are powerful and I'm so grateful that I got to witness them! Beautiful and emotive work... You give us the chance to feel along with you. Thank you."
Marion Richardson
"So powerful, Carol. Thank you for expressing those personal emotions in a visual form. They truly are relatable to to great losses which we all experience in life. Namaste."
Ilsedore Kautsky
"Amazing emotional and artistic statements which anyone can relate to while with reflecting on their own situation."
Larry
"Very strong, emotional works. I can sense the pain, anger, loss, loneliness, the love and dignity you are expressing."
Final Thoughts
"There are many ways to demonstrate and say "thank you". I would like to thank first, my excellent and most creative web administrator, Joe Daniel, for his compassion, dedication and excellent work as our LBD administrator. I would also like to thank my son, Morgan Beare for his excellent photography of all my paintings. I am so grateful for the wonderful comments about my LBD art project. It was a labour of love, as well as a challenge. It was also cathartic. I would like to thank the persons who so enjoyed my paintings that they bought one. That is a great thrill and acknowledgment to an artist and the work sh/he produces. Each painting sold was also an honour to my LBD warrior, Bob. He always encouraged me in my endeavours. I started this project in 2019 so Bob did get to see my first few paintings. I would take photos and bring them to him. For a variety of reasons, I did not paint for many months and the project slowed to a halt. However, the need to complete this project urged me to finish it this March 2021. I would be remiss if I did not thank my art instructors, Alan Daniel and Podi Lawrence, without whose encouragement and excellent critiques, this project would have faltered. The proceeds of each sale have already been allocated to the LBD research fund. So, thank you for being part of helping Dr. S.Pasternak and his LBD research team. Merci mille fois." - Carol Schmidt
Live Event Photo Gallery
Medical disclaimer: Canadian Lewy Body Information does not provide medical advice. The content available on this website does not provide a diagnosis. The information herein is not a substitute for the professional judgment of a healthcare professional. The determination of the need for medical services and the types of healthcare to be provided to a patient are decisions that should be made only by a physician or other licensed health care provider. Always seek the advice of a physician or other qualified healthcare provider with any questions you have regarding a medical condition.