Lewy Body Dementia Resources
Here we have compiled an ever-growing list of online resources and books that you can find on the subject of Lewy Body Dementia. If you have something that you think we should add, connect to us through the button on the bottom of this page.
CLBDI Literature & Original Content
CLBDI Advocacy Letter Template
We recently got together with our advisory board to draft a letter that sheds light on the many issues facing dementia patients, families, and carers in Ontario and across our country. The intention was to make this available to everyone so that anyone who is interested can start the conversation about the current state of dementia care and what is likely to be coming shortly.
Click the link below to read it and get the plain text version, the Word document, and the PDF of the letter. Use it as is or edit it and make it your own.
CLBDI Advocacy Letter 2024.
Did you use our letter template? Have you been in contact with local, provincial, and federal politicians and want to share some insight into the conversation? Send us an email ([email protected]) and let us know.
Click the link below to read it and get the plain text version, the Word document, and the PDF of the letter. Use it as is or edit it and make it your own.
CLBDI Advocacy Letter 2024.
Did you use our letter template? Have you been in contact with local, provincial, and federal politicians and want to share some insight into the conversation? Send us an email ([email protected]) and let us know.
CLBDI Brochure
We are so excited to share a printable PDF version of our two-sided CLBDI pamphlet. The PDF is print ready and includes crop marks and bleed. The sizing for print is 11 x 8.5 inches. The pamphlet features the CLBDI story, some basic information about Lewy Body Dementia, the symptoms of Lewy Body Dementia, and some helpful links to get you started on your LBD journey as a carer or someone newly diagnosed.
Download it here.
If you are interested in ordering some in bulk for your workplace or live event, contact us via any of the contact forms on the site or the email button on the bottom of this page. We're happy to facilitate a large order with our local print connection and work out delivery within the Waterloo Region.
Download it here.
If you are interested in ordering some in bulk for your workplace or live event, contact us via any of the contact forms on the site or the email button on the bottom of this page. We're happy to facilitate a large order with our local print connection and work out delivery within the Waterloo Region.
CLBDI YouTube Videos
Canadian LBD Information's First Online Webinar
This short webinar aims to introduce you to Canadian Lewy Body Dementia Information and shine some light on Lewy Body Dementia itself. We also cover the history and possible symptoms of the disease, tips on how you can help your Loved One with LBD, supporting yourself as a carer, building a care team, and more.
This short webinar aims to introduce you to Canadian Lewy Body Dementia Information and shine some light on Lewy Body Dementia itself. We also cover the history and possible symptoms of the disease, tips on how you can help your Loved One with LBD, supporting yourself as a carer, building a care team, and more.
CLBDI Talks Interview Series - Episode 1: Dr. Stephen Pasternak
Welcome to the first of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we were joined by cognitive neurologist and CLBDI Advisory Board member Dr. Stephen Pasternak (SB, MD CM, PhD, FRCPC) to talk about what drew him to neurology, the state of Lewy Body Dementia research, how our fund-raising efforts will be used in the future, and the importance of taking care of yourself as a care partner.
Thanks again to Dr. Pasternak for taking the time to sit down and chat with us.
Welcome to the first of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we were joined by cognitive neurologist and CLBDI Advisory Board member Dr. Stephen Pasternak (SB, MD CM, PhD, FRCPC) to talk about what drew him to neurology, the state of Lewy Body Dementia research, how our fund-raising efforts will be used in the future, and the importance of taking care of yourself as a care partner.
Thanks again to Dr. Pasternak for taking the time to sit down and chat with us.
CLBDI Talks Interview Series - Episode 2: Natalia Busch RN
Welcome back, Lewy Warriors! We're ending 2023 with the second episode of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
This episode, we were joined by Natalia Busch RN to talk about her job at Sunnyside Home LTC, their recent shift to the Butterfly Approach to long-term caring and what that is, preparing for long-term care in Ontario, and more. Want to learn more about Sunnyside Home and the Butterfly Approach? Check out the links we've posted in the comments!
Thanks again to Natalia for joining us.
Welcome back, Lewy Warriors! We're ending 2023 with the second episode of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
This episode, we were joined by Natalia Busch RN to talk about her job at Sunnyside Home LTC, their recent shift to the Butterfly Approach to long-term caring and what that is, preparing for long-term care in Ontario, and more. Want to learn more about Sunnyside Home and the Butterfly Approach? Check out the links we've posted in the comments!
Thanks again to Natalia for joining us.
CLBDI Talks Interview Series - Episode 3: Janet Johnstone
Hello, Lewy Warriors! Welcome to the first episode of our "CLBDI Talks" interview series in 2024! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we sat down with author, caretaker, artist, and Lewy Warrior Janet Johnstone to talk about her "Lewy Who?" book series, her and her husband's journey with Lewy Body Dementia, caretaking, how art connects with dementia, and more. It was a wonderful conversation and we sincerely thank Janet for taking the time to speak with us.
Want to read her books? Check out the LBD Resources page on our website.
Hello, Lewy Warriors! Welcome to the first episode of our "CLBDI Talks" interview series in 2024! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we sat down with author, caretaker, artist, and Lewy Warrior Janet Johnstone to talk about her "Lewy Who?" book series, her and her husband's journey with Lewy Body Dementia, caretaking, how art connects with dementia, and more. It was a wonderful conversation and we sincerely thank Janet for taking the time to speak with us.
Want to read her books? Check out the LBD Resources page on our website.
CLBDI Talks Interview Series - Episode 4: David Malina
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by CLBDI Advisory Board member and pastor at Christ Lutheran Church in Waterloo, David Malina, to talk about the positives of faith-based support systems, little-known ways that churches can offer support to patients and carers, his experience with dementia, and his time with CLBDI. It was a wonderful and warm conversation and we hope you will check it out, regardless of your faith.
Thanks again to Pastor David for sitting down with us!
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by CLBDI Advisory Board member and pastor at Christ Lutheran Church in Waterloo, David Malina, to talk about the positives of faith-based support systems, little-known ways that churches can offer support to patients and carers, his experience with dementia, and his time with CLBDI. It was a wonderful and warm conversation and we hope you will check it out, regardless of your faith.
Thanks again to Pastor David for sitting down with us!
CLBDI Talks Interview Series - Episode 5: Michelle Martin
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the executive director of the Alzheimer Society Waterloo-Wellington, Michelle Martin, to talk about the Alzheimer Society, how they operate, what they offer people in the Waterloo Region and across Canada, advocacy, education, support, and so much more. We also discuss their two Landmark Studies on dementia and the future of the disease in Canada.
Huge thanks to Michelle Martin for taking the time to speak with us.
You can learn more about the Alzheimer Society Waterloo-Wellington here:
alzheimer.ca/ww/en
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the executive director of the Alzheimer Society Waterloo-Wellington, Michelle Martin, to talk about the Alzheimer Society, how they operate, what they offer people in the Waterloo Region and across Canada, advocacy, education, support, and so much more. We also discuss their two Landmark Studies on dementia and the future of the disease in Canada.
Huge thanks to Michelle Martin for taking the time to speak with us.
You can learn more about the Alzheimer Society Waterloo-Wellington here:
alzheimer.ca/ww/en
CLBDI Talks Interview Series - Episode 6: Carol Schmidt
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the founder of Canadian Lewy Body Dementia information, Carol Schmidt, to celebrate five years of CLBDI and take a look back on our amazing journey thus far. We also discuss the future of CLBDI and the ways we hope to make an impact, share some of our own advice, and thank all the wonderful people we’ve met along the way for their ongoing support. It’s been an exciting and inspiring five years and we can’t wait to see where CLBDI goes from here. We close things out with an important message from cognitive neurologist, advisory board member, and former guest - Dr. Stephen Pasternak.
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the founder of Canadian Lewy Body Dementia information, Carol Schmidt, to celebrate five years of CLBDI and take a look back on our amazing journey thus far. We also discuss the future of CLBDI and the ways we hope to make an impact, share some of our own advice, and thank all the wonderful people we’ve met along the way for their ongoing support. It’s been an exciting and inspiring five years and we can’t wait to see where CLBDI goes from here. We close things out with an important message from cognitive neurologist, advisory board member, and former guest - Dr. Stephen Pasternak.
Careblazer Video Playlists
10 Most Popular Careblazer Videos - https://www.youtube.com/playlist?list=PL98pUDsDskLdiW5DkzXK-tVkOPd1MNXAy
Caregiver Stress and Support - https://www.youtube.com/playlist?list=PL98pUDsDskLeiKh2b5F3ozqusni_25xUY
LBD Video Content
The SciShow - "The Science of Lewy Body Dementia"
Pat Snyder, Caring For John - "Decision Fatigue: Caregiver Class"
Pat Snyder, Caring For John - "The 5 P's"
Pat Snyder, Caring For John - "The 5 Moving Parts Of Dementia"
Being Patient Alzheimer's - "It Took Seven Doctors to Diagnose Lewy Body Dementia | Perspectives | Being Patient Alzheimer's"
Pat Snyder, Caring For John - "Good Resource Books"
Pat Snyder, Caring For John - "The Power Of Being Positive"
BJ Miller - "What Really Matters At The End Of Life" (TED Talk)
Being Patient Alzheimer's - "Man With Lewy Body Dementia Misdiagnosed For Years"
The Michael J. Fox Foundation for Parkinson's Research - "On Your Feet: Addressing Gait and Balance Issues in Parkinson's" (relating to the Parkinson-like physical symptoms of LBD)
UCSF Memory and Aging Center - "Behaviour and mood symptoms in Lewy Body Dementia"
A Charming Abode - "Living With Lewy Body Dementia | Our Secret Journey Ep. 1"
Playlist - https://youtube.com/playlist?list=PL1nvGicGMjQHwEy8ynxT0EfDbpIrTNM2I
Playlist - https://youtube.com/playlist?list=PL1nvGicGMjQHwEy8ynxT0EfDbpIrTNM2I
Being Patient Alzheimer's - "Living With lewy Body Dementia & Parkinsonism"
UCLA Alzheimer’s and Dementia Care Program - "Caregiver Training: Sundowning”
Teepa Snow - "Courageous Conversations: Living With Lewy Body Dementia”
LBDAtv - "LBDA Webinar: Living with LBD: The Firsthand Perspective"
Channel - https://www.youtube.com/user/LBDAtv
Channel - https://www.youtube.com/user/LBDAtv
The Lewy Society - "Managing Hallucinations And Changes In Visual Perception In Lewy Body Dementia"
LBDAtv - "Too Young For Lewy? Meet JR Pagan."
Online Medical Material & Dementia Resources
The Canadian Charter of Rights for People with Dementia (Alzheimer Society Canada) - https://alzheimer.ca/en/take-action/change-minds/canadian-charter-rights-people-dementia
Finding Your Way Ontario - http://findingyourwayontario.ca/
Find A Seniors Active Living Centre Program Near You - www.ontario.ca/page/find-seniors-active-living-centre-program-near-you
Navigating The Path Forward For Dementia In Canada (Landmark Study Vol. 1) - https://alzheimer.ca/en/research/reports-dementia/landmark-study-report-1-path-forward
The Many Faces Of Dementia In Canada (Landmark Study Vol. 2) - alzheimer.ca/en/the-many-faces-of-dementia-in-canada-landmark-study-volume-2
International Lewy Body Dementia Conference 2022 (Video Playlist) - https://youtube.com/playlist?list=PLGS6p-MbzJgs7qNCWLupw69-qN6IWwL9L
I Live With Dementia. Let Me Help You Understand. - https://ilivewithdementia.ca/
LBDA Lewy Body Care Brief - https://www.lbda.org/sites/default/files/care_brief_be_aware_of_polypharmacy_rd_3-18.pdf?fbclid=IwAR1wEvbz7Fh3mCwxjnrnulOPolDrGcnn-Nz_-kgiaErDxAmyumWLSdi7neM
The Canadian Consortium on Neurodegeneration in Aging -https://ccna-ccnv.ca/
Ministerial Advisory Board on Dementia Membership List - https://www.canada.ca/en/public-health/corporate/mandate/about-agency/external-advisory-bodies/ministerial-advisory-board-dementia/membership-list.html
The Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025
Alzheimers Association - https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/lewy-body-dementia
"The Terrorist Inside my Husband's Brain." - https://n.neurology.org/content/87/13/1308
Alzheimers Society of Canada - https://alzheimer.ca/sites/default/files/files/national/other-dementias/other_dementias_lewy_body_e.pdf
National Institute of Aging (USA) - https://www.nia.nih.gov/health/what-lewy-body-dementia
Memory Care Facilities (USA) - https://www.memorycarefacilities.net/
Dementia Support - http://www.dementiasupport.ca/web/alzheimers-disease-and-dementia/what-is-lewy-body-dementia/
Lewy Body Dementia: Information For Patients, Families, and Professionals - https://www.lbda.org/sites/default/files/lewy_body_dementia-2018_update-final.pdf
10 Things You Should Know About LBD - https://www.lbda.org/go/10-things-you-should-know-about-lbd
Lewy Who? (Pamphlet) - https://www.lbda.org/sites/default/files/78303_lbda_web-view_1024x768.pdf
Three Minute LBD Test - https://www.medscape.com/viewarticle/854577#vp_1
Three Minute Test Detects Parkinson's + Lewy Body Dementia - https://parkinsonsnewstoday.com/2015/11/02/3-minute-test-detects-parkinsons-lewy-body-dementia/
Sound Expression Speech Therapy (Trusted 519 Local) - https://www.soundexpression.ca/
Aging Care - https://www.agingcare.com
Webinar Series On Parkinson's and Parkinsonian Symptoms - https://www.youtube.com/playlist?list=PLkPIhQnN7cN6dAJZ5K5zQzY84btUTLo_C
Lewy Body Dementia Podcast by Timothy Hudson - soundcloud.com/lewy-body-dementia/
Lewy Body Dementia: The State Of The Science by LBDA - https://www.lbda.org/lbd-state-of-the-science/
Robin's Wish Events - https://lewybodyresourcecenter.org/robins-wish-events/
Tips For Coping With Sundowning - https://www.nia.nih.gov/health/tips-coping-sundowning
SUNDOWNING: WHAT IT IS AND HOW YOU CAN HELP - https://lewybodyresourcecenter.org/sundowning-what-it-is-and-how-you-can-help/
Sundowning: Late-Day Confusion - https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/expert-answers/sundowning/
The Best Medical Alert Systems - health.com/health-reviews/the-best-medical-alert-systems
Aging In Place: Why You Or A Loved One May Want To Grow Older At Home - health.com/home/aging-in-place-why-you-or-a-loved-one-growing-older-at-home
“I Am The Very Same Person That You Knew Before”: How To Talk To a Person With Dementia - https://www.beingpatient.com/stigma-of-dementia-communication-lessons/
Ontario Brain Institute: Public Talks Archive - https://braininstitute.ca/resources/obi-public-talks
Mayo Clinic Connect: Dementia Hub - https://connect.mayoclinic.org/blog/dementia-hub/
7 Signs of Caregiver Burnout - https://www.verywellhealth.com/signs-of-caregiver-burnout-97981
Four Little-Known Facts About Lewy Body Dementia - https://lewybodyresourcecenter.org/four-little-known-facts-about-lewy-body-dementia/
The Lewy Body Society's (YouTube Channel) - https://www.youtube.com/channel/UC2cHAD_mF6rCX8bA8pnoSdw
Dementia Careblazers (YouTube Channel) - https://www.youtube.com/c/DementiaCareblazers
LBDAtv (YouTube Channel) - https://www.youtube.com/user/LBDAtv
Teepa Snow's Positive Approach To Care (YouTube Channel) - https://www.youtube.com/@teepasnowvideos
Alzheimer Society Canada Research and Reports - https://alzheimer.ca/en/research/reports-dementia
Dementia Concerns and Considerations: A CADTH Panel of People With Lived Experience (Report) -https://www.cadth.ca/dementia-concerns-and-considerations-cadth-panel-people-lived-experience
"Sharing & Caring: How To Share the Work of Family Caregiving" from Being Patient -https://www.beingpatient.com/family-caregivers-strategies/
"Conversation Starters for People With Dementia" - https://www.verywellhealth.com/conversation-starters-for-dementia-97962
"Keeping A Dementia Journal Makes Caregiving Easier: 7 Things To Track" - https://dailycaring.com/keeping-a-dementia-journal-makes-caregiving-easier-7-things-to-track/
"Please Don’t Stop the Music: 3 Ways to Use Music As Therapy Dementia Care" - https://www.beingpatient.com/how-to-use-music-therapy-in-dementia-care/
Views From Within: A Lewy Body Video Series - https://lewybodyresourcecenter.org/views-from-within-a-lewy-body-video-series/
Lewy Body Life (Podcast) - https://lewybodylife.com/episodes/
Dementia Friendly Communities Ontario - https://alzheimer.ca/on/en/take-action/become-dementia-friendly/dementia-friendly-communities-ontario
The New Dementia Learning Hub - dementiahelp.ca/dementia-learning-hub/
The Ontario Caregivers Organization - ontariocaregiver.ca/
The Petro‑Canada CareMakers Foundation - https://www.caremakers.ca/
The Lewy Learning Center (LBDA) - https://lewy-learning-center.thinkific.com/
Driving With Dementia (The Alzheimer Societ of Canada) - alzheimer.ca/en/help-support/im-living-dementia/managing-changes-your-abilities/driving-dementia?gad_source=1&gclid=EAIaIQobChMI-L6yxPaZhAMVWQCtBh0Nvw3wEAAYAiAAEgK5QfD_BwE
Crossroads: Navigating Driving and Dementia (Podcast) - www.cabhi.com/podcast/crossroads-navigating-driving-and-dementia/?gclid=EAIaIQobChMI-L6yxPaZhAMVWQCtBh0Nvw3wEAAYBCAAEgI0TfD_BwE
Dementia Dialogue (Podcast) - www.dementiadialogue.ca/
The Schlegel-UW Research Institute For Aging - https://the-ria.ca/
Race Against Dementia - www.raceagainstdementia.com/
Dementia And Driving Tips (American) - https://www.wvpersonalinjury.com/dementia-and-driving/
Living Safely Independently (The Alzheimer Society Canada) - alzheimer.ca/en/help-support/im-living-dementia/living-well-dementia/living-safely-independently#Strategies_to_help_you_stay_safe
Finding Your Way Ontario - http://findingyourwayontario.ca/
Find A Seniors Active Living Centre Program Near You - www.ontario.ca/page/find-seniors-active-living-centre-program-near-you
Navigating The Path Forward For Dementia In Canada (Landmark Study Vol. 1) - https://alzheimer.ca/en/research/reports-dementia/landmark-study-report-1-path-forward
The Many Faces Of Dementia In Canada (Landmark Study Vol. 2) - alzheimer.ca/en/the-many-faces-of-dementia-in-canada-landmark-study-volume-2
International Lewy Body Dementia Conference 2022 (Video Playlist) - https://youtube.com/playlist?list=PLGS6p-MbzJgs7qNCWLupw69-qN6IWwL9L
I Live With Dementia. Let Me Help You Understand. - https://ilivewithdementia.ca/
LBDA Lewy Body Care Brief - https://www.lbda.org/sites/default/files/care_brief_be_aware_of_polypharmacy_rd_3-18.pdf?fbclid=IwAR1wEvbz7Fh3mCwxjnrnulOPolDrGcnn-Nz_-kgiaErDxAmyumWLSdi7neM
The Canadian Consortium on Neurodegeneration in Aging -https://ccna-ccnv.ca/
Ministerial Advisory Board on Dementia Membership List - https://www.canada.ca/en/public-health/corporate/mandate/about-agency/external-advisory-bodies/ministerial-advisory-board-dementia/membership-list.html
The Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025
Alzheimers Association - https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/lewy-body-dementia
"The Terrorist Inside my Husband's Brain." - https://n.neurology.org/content/87/13/1308
Alzheimers Society of Canada - https://alzheimer.ca/sites/default/files/files/national/other-dementias/other_dementias_lewy_body_e.pdf
National Institute of Aging (USA) - https://www.nia.nih.gov/health/what-lewy-body-dementia
Memory Care Facilities (USA) - https://www.memorycarefacilities.net/
Dementia Support - http://www.dementiasupport.ca/web/alzheimers-disease-and-dementia/what-is-lewy-body-dementia/
Lewy Body Dementia: Information For Patients, Families, and Professionals - https://www.lbda.org/sites/default/files/lewy_body_dementia-2018_update-final.pdf
10 Things You Should Know About LBD - https://www.lbda.org/go/10-things-you-should-know-about-lbd
Lewy Who? (Pamphlet) - https://www.lbda.org/sites/default/files/78303_lbda_web-view_1024x768.pdf
Three Minute LBD Test - https://www.medscape.com/viewarticle/854577#vp_1
Three Minute Test Detects Parkinson's + Lewy Body Dementia - https://parkinsonsnewstoday.com/2015/11/02/3-minute-test-detects-parkinsons-lewy-body-dementia/
Sound Expression Speech Therapy (Trusted 519 Local) - https://www.soundexpression.ca/
Aging Care - https://www.agingcare.com
Webinar Series On Parkinson's and Parkinsonian Symptoms - https://www.youtube.com/playlist?list=PLkPIhQnN7cN6dAJZ5K5zQzY84btUTLo_C
Lewy Body Dementia Podcast by Timothy Hudson - soundcloud.com/lewy-body-dementia/
Lewy Body Dementia: The State Of The Science by LBDA - https://www.lbda.org/lbd-state-of-the-science/
Robin's Wish Events - https://lewybodyresourcecenter.org/robins-wish-events/
Tips For Coping With Sundowning - https://www.nia.nih.gov/health/tips-coping-sundowning
SUNDOWNING: WHAT IT IS AND HOW YOU CAN HELP - https://lewybodyresourcecenter.org/sundowning-what-it-is-and-how-you-can-help/
Sundowning: Late-Day Confusion - https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/expert-answers/sundowning/
The Best Medical Alert Systems - health.com/health-reviews/the-best-medical-alert-systems
Aging In Place: Why You Or A Loved One May Want To Grow Older At Home - health.com/home/aging-in-place-why-you-or-a-loved-one-growing-older-at-home
“I Am The Very Same Person That You Knew Before”: How To Talk To a Person With Dementia - https://www.beingpatient.com/stigma-of-dementia-communication-lessons/
Ontario Brain Institute: Public Talks Archive - https://braininstitute.ca/resources/obi-public-talks
Mayo Clinic Connect: Dementia Hub - https://connect.mayoclinic.org/blog/dementia-hub/
7 Signs of Caregiver Burnout - https://www.verywellhealth.com/signs-of-caregiver-burnout-97981
Four Little-Known Facts About Lewy Body Dementia - https://lewybodyresourcecenter.org/four-little-known-facts-about-lewy-body-dementia/
The Lewy Body Society's (YouTube Channel) - https://www.youtube.com/channel/UC2cHAD_mF6rCX8bA8pnoSdw
Dementia Careblazers (YouTube Channel) - https://www.youtube.com/c/DementiaCareblazers
LBDAtv (YouTube Channel) - https://www.youtube.com/user/LBDAtv
Teepa Snow's Positive Approach To Care (YouTube Channel) - https://www.youtube.com/@teepasnowvideos
Alzheimer Society Canada Research and Reports - https://alzheimer.ca/en/research/reports-dementia
Dementia Concerns and Considerations: A CADTH Panel of People With Lived Experience (Report) -https://www.cadth.ca/dementia-concerns-and-considerations-cadth-panel-people-lived-experience
"Sharing & Caring: How To Share the Work of Family Caregiving" from Being Patient -https://www.beingpatient.com/family-caregivers-strategies/
"Conversation Starters for People With Dementia" - https://www.verywellhealth.com/conversation-starters-for-dementia-97962
"Keeping A Dementia Journal Makes Caregiving Easier: 7 Things To Track" - https://dailycaring.com/keeping-a-dementia-journal-makes-caregiving-easier-7-things-to-track/
"Please Don’t Stop the Music: 3 Ways to Use Music As Therapy Dementia Care" - https://www.beingpatient.com/how-to-use-music-therapy-in-dementia-care/
Views From Within: A Lewy Body Video Series - https://lewybodyresourcecenter.org/views-from-within-a-lewy-body-video-series/
Lewy Body Life (Podcast) - https://lewybodylife.com/episodes/
Dementia Friendly Communities Ontario - https://alzheimer.ca/on/en/take-action/become-dementia-friendly/dementia-friendly-communities-ontario
The New Dementia Learning Hub - dementiahelp.ca/dementia-learning-hub/
The Ontario Caregivers Organization - ontariocaregiver.ca/
The Petro‑Canada CareMakers Foundation - https://www.caremakers.ca/
The Lewy Learning Center (LBDA) - https://lewy-learning-center.thinkific.com/
Driving With Dementia (The Alzheimer Societ of Canada) - alzheimer.ca/en/help-support/im-living-dementia/managing-changes-your-abilities/driving-dementia?gad_source=1&gclid=EAIaIQobChMI-L6yxPaZhAMVWQCtBh0Nvw3wEAAYAiAAEgK5QfD_BwE
Crossroads: Navigating Driving and Dementia (Podcast) - www.cabhi.com/podcast/crossroads-navigating-driving-and-dementia/?gclid=EAIaIQobChMI-L6yxPaZhAMVWQCtBh0Nvw3wEAAYBCAAEgI0TfD_BwE
Dementia Dialogue (Podcast) - www.dementiadialogue.ca/
The Schlegel-UW Research Institute For Aging - https://the-ria.ca/
Race Against Dementia - www.raceagainstdementia.com/
Dementia And Driving Tips (American) - https://www.wvpersonalinjury.com/dementia-and-driving/
Living Safely Independently (The Alzheimer Society Canada) - alzheimer.ca/en/help-support/im-living-dementia/living-well-dementia/living-safely-independently#Strategies_to_help_you_stay_safe
LBD Websites
The Lewy Body Society - https://www.lewybody.org
The Lewy Body Resource Center - https://lewybodyresourcecenter.org/
Lewy Body Dementia Association - https://www.lbda.org/
Lewy Body Dementia Canada - http://www.lewybodydementia.ca/
Alzheimer Society Canada - https://alzheimer.ca/en
Alzheimer Society Waterloo Wellington - https://alzheimer.ca/ww/
The Dementia Society Ottawa and Renfrew County - https://dementiahelp.ca/
Dementia Australia - https://www.dementia.org.au/research
Dementia Advocacy Canada - https://dementiacanada.com/
Dementia Together - https://dementiatogether.org/
The Purple Sherpa - https://thepurplesherpa.org/
Forward with Dementia - https://www.forwardwithdementia.org/ca-en/
Dementia Carers Canada - https://www.dementiacarers.ca/
Lewy Body Ireland - https://lewybodyireland.org/
Lewy Body Dialogue - https://www.lewybodydialogue.com/
Lewy Body International - https://lewybodyint.org/
The Lewy Body Resource Center - https://lewybodyresourcecenter.org/
Lewy Body Dementia Association - https://www.lbda.org/
Lewy Body Dementia Canada - http://www.lewybodydementia.ca/
Alzheimer Society Canada - https://alzheimer.ca/en
Alzheimer Society Waterloo Wellington - https://alzheimer.ca/ww/
The Dementia Society Ottawa and Renfrew County - https://dementiahelp.ca/
Dementia Australia - https://www.dementia.org.au/research
Dementia Advocacy Canada - https://dementiacanada.com/
Dementia Together - https://dementiatogether.org/
The Purple Sherpa - https://thepurplesherpa.org/
Forward with Dementia - https://www.forwardwithdementia.org/ca-en/
Dementia Carers Canada - https://www.dementiacarers.ca/
Lewy Body Ireland - https://lewybodyireland.org/
Lewy Body Dialogue - https://www.lewybodydialogue.com/
Lewy Body International - https://lewybodyint.org/
Facebook Groups
Canadian LBD Information - https://www.facebook.com/CanadianLBDInfo/
Alzheimer Society Canada - https://www.facebook.com/AlzheimerCanada/
Alzheimer Society Waterloo Wellington - https://www.facebook.com/alzsocww/
Lewy Body Dementia Canada - https://www.facebook.com/Lewy.ca/
Lewy Body Dementia Association - https://www.facebook.com/LewyBodyDementia/
Lewy Body Resource Center - https://www.facebook.com/lewybodyNY/
The Purple Sherpa - https://www.facebook.com/ThePurpleSherpa/
Forward with Dementia - https://www.facebook.com/ForwardwithDementiaCA
Dementia Awareness. Every Day. - https://www.facebook.com/dementia.awareness.every.day/
Dementia Advocacy Canada - https://www.facebook.com/DementiaCanada
LBD Association Care Partner Support Group - https://www.facebook.com/groups/LBDACarePartnerSupportGroup/
The Dementia Society Ottawa and Renfrew County - https://www.facebook.com/TheDementiaSociety
The Schlegel-UW Research Institute For Aging - https://www.facebook.com/SchlegelUWRIA
Race Against Dementia - www.facebook.com/racingdementia
Beyond Lewy: A Group For Grieving Adult Children (LBDA) - www.facebook.com/groups/lbdabeyondlewy
Alzheimer Society Canada - https://www.facebook.com/AlzheimerCanada/
Alzheimer Society Waterloo Wellington - https://www.facebook.com/alzsocww/
Lewy Body Dementia Canada - https://www.facebook.com/Lewy.ca/
Lewy Body Dementia Association - https://www.facebook.com/LewyBodyDementia/
Lewy Body Resource Center - https://www.facebook.com/lewybodyNY/
The Purple Sherpa - https://www.facebook.com/ThePurpleSherpa/
Forward with Dementia - https://www.facebook.com/ForwardwithDementiaCA
Dementia Awareness. Every Day. - https://www.facebook.com/dementia.awareness.every.day/
Dementia Advocacy Canada - https://www.facebook.com/DementiaCanada
LBD Association Care Partner Support Group - https://www.facebook.com/groups/LBDACarePartnerSupportGroup/
The Dementia Society Ottawa and Renfrew County - https://www.facebook.com/TheDementiaSociety
The Schlegel-UW Research Institute For Aging - https://www.facebook.com/SchlegelUWRIA
Race Against Dementia - www.facebook.com/racingdementia
Beyond Lewy: A Group For Grieving Adult Children (LBDA) - www.facebook.com/groups/lbdabeyondlewy
Latest LBD News
- "The New Program Connecting People with Dementia to Community Supports" (DREAM) - www.healthinsight.ca/advocacy/patient-access-2024/the-new-program-connecting-people-with-dementia-to-community-supports/
- "Province makes pair of funding announcements for primary care teams in Waterloo Region" - kitchener.citynews.ca/2024/02/16/province-make-pair-of-funding-announcements-for-primary-care-teams-in-region/
- "What My Father’s Struggle With Dementia Taught Me About Being Human" - https://community.thriveglobal.com/dementia-memory-loss-family-father-care/
- "How to confront a parent's Dementia" - https://www.bbc.com/future/article/20220907-caring-for-a-parent-with-dementia
- "Care for people living with Dementia in Guelph could improve" - https://www.guelphtoday.com/local-news/care-for-people-living-with-dementia-in-guelph-could-improve-6011349?utm_source=Email_Share&utm_medium=Email_Share&utm_campaign=Email_Share
- "The last things a caregiver for a loved one needs to hear – and the first" - https://www.theglobeandmail.com/life/health-and-fitness/health-advisor/the-last-things-a-caregiver-for-a-loved-one-needs-to-hear-and-the-first/article29272414/
- "Local filmmaker depicts the struggles of dementia in 'Wooden Spoon'" - https://kitchener.citynews.ca/local-news/local-filmmaker-depicts-the-struggles-of-dementia-in-wooden-spoon-5444561?utm_source=Email&utm_medium=Email&utm_campaign=Email
- "'It’s important to know what’s out there to help': Woman shares late husband's Parkinson's story" - https://www.barrietoday.com/local-news/its-important-to-know-whats-out-there-to-help-woman-shares-late-husbands-parkinsons-story-5251239
- "Remembering Bob Schmidt, a Lewy Warrior" - https://www.therecord.com/life/2022/02/07/remembering-bob-schmidt-a-lewy-warrior.html
- "What Is Lewy Body Dementia? Frank Bonner of 'WKRP in Cincinnati' Dies of Complications" - https://www.newsweek.com/lewy-body-dementia-symptoms-explained-actor-frank-bonner-dies-1601855
- "A Closer Look at the Disease That Devastated Robin Williams' Life" - https://www.aarp.org/entertainment/movies-for-grownups/info-2020/robin-williams-lewy-body-dementia.html
- "Dementia dimensions: Affected Japan man draws his hallucinations to alter attitudes" - https://mainichi.jp/english/articles/20200219/p2a/00m/0na/025000c
- "London researchers may be one step closer to better dementia diagnosis" - https://lfpress.com/news/local-news/london-researchers-may-be-one-step-closer-to-better-dementia-diagnosis
- "Ohio State researchers identify new biomarkers that differentiate Lewy body dementia from Alzheimer’s and Parkinson’s" - https://wexnermedical.osu.edu/departments/innovations/neuronews/lewy-body
- "Apathy may precede dementia years before other symptoms" - www.medicalnewstoday.com/articles/apathy-may-precede-dementia-years-before-other-symptoms
- "Signs and symptoms of Lewy body dementia" - https://medicalxpress.com/news/2020-09-symptoms-lewy-body-dementia.html
- "What’s Up Doc column: Is Lewy body dementia the same thing as Alzheimer’s?" - https://www.ottawaherald.com/lifestyle/20200929/whats-up-doc-column-is-lewy-body-dementia-same-thing-as-alzheimers
- "Tom Seaver, like Robin Williams, had Lewy body dementia, but what is this strange illness? A neurologist explains" - https://theconversation.com/tom-seaver-like-robin-williams-had-lewy-body-dementia-but-what-is-this-strange-illness-a-neurologist-explains-145596
- "Robin Williams' widow Susan opens up about last days" - https://www.rte.ie/entertainment/2020/0902/1162721-robin-williams-widow-susan-opens-up-about-last-days/?fbclid=IwAR0p20hOVCZR9epytl7E2A-3AA43j4iPDFTB980sCHC47EWLJctOBHsfwBE
- "Dementia diet - the best type of vegetable to protect against Alzheimer's". - https://www.express.co.uk/life-style/health/1321981/dementia-diet-alzheimers-symptoms-signs-leafy-green-vegetables
- "New Robin Williams Documentary Sheds Light on Lewy Body Dementia". - https://www.newsweek.com/new-robin-williams-documentary-shows-struggles-dementia-1524286
- "Knowing the signs of Lewy Body Dementia may help speed diagnosis". - https://news.yahoo.com/knowing-signs-lewy-body-dementia-180645217.html
- "LBD and Coronavirus." - www.lbda.org/Coronavirus
- "Canadians living with dementia break silence on stigma in Alzheimer Society campaign: I live with dementia. Let me help you understand." - https://www.newswire.ca/news-releases/canadians-living-with-dementia-break-silence-on-stigma-in-alzheimer-society-campaign-i-live-with-dementia-let-me-help-you-understand--821169286.html
- "The Novascotian: Dartmouth Couple Copes With Lewy Body Dementia" - https://www.saltwire.com/lifestyles/local-lifestyles/the-novascotian-dartmouth-couple-copes-with-lewy-body-dementia-455533/
- "Here’s what you need to know about dementia, and ways to reduce your risk" - https://vancouversun.com/sponsored/news-sponsored/heres-what-you-need-to-know-about-dementia-and-ways-to-reduce-your-risk
- "Lewy Body Dementia Association Announces Recipients of the Dorothy Mangurian Volunteer of the Year Award" - https://www.prnewswire.com/news-releases/lewy-body-dementia-association-announces-recipients-of-the-dorothy-mangurian-volunteer-of-the-year-award-300904438.html
- "Dementia symptoms: Early sign of Lewy body dementia when you sleep - are you at risk?" - https://www.express.co.uk/life-style/health/1162771/dementia-symptoms-early-signs-lewy-body-sleep-difficulties-help-causes
- "Ontario judge turns to expressive art after diagnosis of Lewy Body Dementia." - https://www.ctvnews.ca/health/ontario-judge-turns-to-expressive-art-after-diagnosis-of-lewy-body-dementia-1.4195369
- "Potential Blood Test For Dementia Exciting News for Doctors, Patients..." - globalnews.ca/news/5499597/potential-blood-test-for-dementia-exciting-news-for-doctors-patients-says-manitoba-expert/
- "The Terrorist Inside My Husband's Brain." - https://n.neurology.org/content/87/13/1308
- "Advances In The Global Search For Blood Markers For Alzheimer's Disease And Other Dementias": https://www.newswire.ca/news-releases/advances-in-the-global-search-for-blood-markers-for-alzheimer-s-disease-and-other-dementias-828085629.html
- "'First step': Canada's $50M national dementia strategy unveiled.": https://www.ctvnews.ca/health/first-step-canada-s-50m-national-dementia-strategy-unveiled-1.4470397
- "The Lewy Body Dementia Resource Center is Hosting an Exclusive Private Screening and Reception of Robin's Wish at Lincoln Center in New York": https://www.prnewswire.com/news-releases/the-lewy-body-dementia-resource-center-is-hosting-an-exclusive-private-screening-and-reception-of-robins-wish-at-lincoln-center-in-new-york-300883028.html
- "Health Care Teams Turn To CBD Oil To Treat Difficult Symptoms Of Dementia." https://www.ctvnews.ca/health/health-care-teams-turn-to-cbd-oil-to-treat-difficult-symptoms-of-dementia-1.4499752
- "Baseball Great Dies of Lewy Body Dementia: So, what is the disease that took Bill Buckner's life?":
https://www.medpagetoday.com/blogs/celebritydiagnosis/80289
Grief and Loss
Center For Loss and Life Transition - https://www.centerforloss.com/
Help Guide: Coping With Grief And Loss - https://www.helpguide.org/articles/grief/coping-with-grief-and-loss.htm
CMHA: Understanding And Coping With Loss and Grief -https://ontario.cmha.ca/documents/understanding-and-coping-with-loss-and-grief/
Help Guide: Coping With Grief And Loss - https://www.helpguide.org/articles/grief/coping-with-grief-and-loss.htm
CMHA: Understanding And Coping With Loss and Grief -https://ontario.cmha.ca/documents/understanding-and-coping-with-loss-and-grief/
Lewy Body Dementia Literature and Other Related Books
Lewy Who? The Calm and the Storm
J.J. Johnstone
https://www.amazon.ca/LEWY-WHO-Calm-Storm-Johnstone/dp/B092XK11FH/ref=asc_df_B092XK11FH/?tag=googleshopc0c-20&linkCode=df0&hvadid=459298944151&hvpos=&hvnetw=g&hvrand=13495853442870213595&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9001029&hvtargid=pla-1386869199994&psc=1
J.J. Johnstone
https://www.amazon.ca/LEWY-WHO-Calm-Storm-Johnstone/dp/B092XK11FH/ref=asc_df_B092XK11FH/?tag=googleshopc0c-20&linkCode=df0&hvadid=459298944151&hvpos=&hvnetw=g&hvrand=13495853442870213595&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9001029&hvtargid=pla-1386869199994&psc=1
Lewy Who? II: Into The Fog
J.J. Johnstone
https://www.amazon.ca/Lewy-Who-II-Into-Fog/dp/B09LGWL6YD/ref=asc_df_B09LGWL6YD/?tag=googleshopc0c-20&linkCode=df0&hvadid=548915731131&hvpos=&hvnetw=g&hvrand=13495853442870213595&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9001029&hvtargid=pla-1465953979385&psc=1
J.J. Johnstone
https://www.amazon.ca/Lewy-Who-II-Into-Fog/dp/B09LGWL6YD/ref=asc_df_B09LGWL6YD/?tag=googleshopc0c-20&linkCode=df0&hvadid=548915731131&hvpos=&hvnetw=g&hvrand=13495853442870213595&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9001029&hvtargid=pla-1465953979385&psc=1
Lewy Who? III: The Long Goodbye
J.J. Johnstone
https://www.amazon.com/LEWY-WHO-III-long-GOODBYE/dp/B0C2SH6J1H/ref=sr_1_1?crid=18SX93G7T2747&keywords=lewy+who+the+long+goodbye&qid=1682534216&s=books&sprefix=lewy+who+the+long+goodbye%2Cstripbooks-intl-ship%2C86&sr=1-1
J.J. Johnstone
https://www.amazon.com/LEWY-WHO-III-long-GOODBYE/dp/B0C2SH6J1H/ref=sr_1_1?crid=18SX93G7T2747&keywords=lewy+who+the+long+goodbye&qid=1682534216&s=books&sprefix=lewy+who+the+long+goodbye%2Cstripbooks-intl-ship%2C86&sr=1-1
Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief
Pauline Boss, PhD
https://www.amazon.ca/Loving-Someone-Who-Has-Dementia/dp/1118002296
Pauline Boss, PhD
https://www.amazon.ca/Loving-Someone-Who-Has-Dementia/dp/1118002296
It's Ok That You're Not Ok: Meeting Grief and Loss in a Culture That Doesn't Understand
Megan Devine
https://www.amazon.ca/Its-That-Youre-Not-Understand/dp/1622039076
Megan Devine
https://www.amazon.ca/Its-That-Youre-Not-Understand/dp/1622039076
Dementia with Lewy Body and Parkinson's Disease Patients: Patient, Family, and Clinician Working Together for Better Outcomes
Dr. J. Eric Ahlskog MD PhD
https://www.amazon.com/Dementia-Lewy-Bodies-Parkinsons-Disease/dp/0199977569
Dr. J. Eric Ahlskog MD PhD
https://www.amazon.com/Dementia-Lewy-Bodies-Parkinsons-Disease/dp/0199977569
Contented Dementia
Oliver James
https://www.amazon.com/Contented-Dementia-Oliver-James/dp/0091901812/ref=sr_1_1?keywords=Contented+Dementia&qid=1564441866&s=books&sr=1-
Oliver James
https://www.amazon.com/Contented-Dementia-Oliver-James/dp/0091901812/ref=sr_1_1?keywords=Contented+Dementia&qid=1564441866&s=books&sr=1-
Dementia - Support for Family and Friends
Dave Pulsford and Rachel Thompson
https://www.amazon.com/Dementia-Support-Friends-Dave-Pulsford/dp/1849052433/ref=sr_1_1?keywords=Dementia+-+Support+for+Family+and+Friends&qid=1564441885&s=books&sr=1-1
Dave Pulsford and Rachel Thompson
https://www.amazon.com/Dementia-Support-Friends-Dave-Pulsford/dp/1849052433/ref=sr_1_1?keywords=Dementia+-+Support+for+Family+and+Friends&qid=1564441885&s=books&sr=1-1
Forgetting Memory: Creating Better Lives For People With Dementia
Anne Basting
https://www.amazon.com/Forget-Memory-Creating-Better-Dementia/dp/0801892503/ref=sr_1_1?keywords=Forgetting+Memory%3A+Creating+Better+Lives+For+People+With+Dementia&qid=1564441970&s=books&sr=1-1
Anne Basting
https://www.amazon.com/Forget-Memory-Creating-Better-Dementia/dp/0801892503/ref=sr_1_1?keywords=Forgetting+Memory%3A+Creating+Better+Lives+For+People+With+Dementia&qid=1564441970&s=books&sr=1-1
A Caregiver's Guid To Lewy Body Dementia
Helen Buell Whitworth and Jim Whitworth
https://www.amazon.com/Caregivers-Guide-Lewy-Body-Dementia/dp/193260393X/ref=sr_1_1?keywords=a+caregiver%27s+guide+to+lewy+body+dementia&qid=1564442066&s=books&sr=1-
Helen Buell Whitworth and Jim Whitworth
https://www.amazon.com/Caregivers-Guide-Lewy-Body-Dementia/dp/193260393X/ref=sr_1_1?keywords=a+caregiver%27s+guide+to+lewy+body+dementia&qid=1564442066&s=books&sr=1-
Caring For A Loved One With Dementia: A Mindfulness-Based Guide For Reducing Stress And Making The Best Of Your Journey Together
Marguerite Manteau-Rao
https://www.amazon.com/Caring-Loved-One-Dementia-Mindfulness-Based/dp/1626251576/ref=sr_1_1?keywords=Caring+For+A+Loved+One+With+Dementia%3A+A+Mindfulness-Based+Guide+For+Reducing+Stress+And+Making+The+Best+Of+Your+Journey+Together&qid=1564442083&s=books&sr=1-1
Marguerite Manteau-Rao
https://www.amazon.com/Caring-Loved-One-Dementia-Mindfulness-Based/dp/1626251576/ref=sr_1_1?keywords=Caring+For+A+Loved+One+With+Dementia%3A+A+Mindfulness-Based+Guide+For+Reducing+Stress+And+Making+The+Best+Of+Your+Journey+Together&qid=1564442083&s=books&sr=1-1
When Reasoning No Longer Works: A Practical Guide For Caregivers Dealing With Dementia and Alzheimer's Care
Angel Smits
https://www.amazon.com/When-Reasoning-Longer-Works-Caregivers/dp/1941528139/ref=sr_1_1?keywords=When+Reasoning+No+Longer+Works%3A+A+Practical+Guide+For+Caregivers+Dealing+With+Dementia+and+Alzheimer%27s+Care&qid=1564442112&s=books&sr=1-1
Angel Smits
https://www.amazon.com/When-Reasoning-Longer-Works-Caregivers/dp/1941528139/ref=sr_1_1?keywords=When+Reasoning+No+Longer+Works%3A+A+Practical+Guide+For+Caregivers+Dealing+With+Dementia+and+Alzheimer%27s+Care&qid=1564442112&s=books&sr=1-1
Living With Lewy Body Dementia: One Caregiver's Personal, In-Depth Experience
Judy Towne Jennings
https://www.amazon.com/Living-Lewy-Body-Dementia-Depth/dp/1449760953/ref=sr_1_1?keywords=%E2%80%8BLiving+With+Lewy+Body+Dementia%3A+One+Caregiver%27s+Personal%2C+In-Depth+Experience&qid=1564442126&s=books&sr=1-1
Judy Towne Jennings
https://www.amazon.com/Living-Lewy-Body-Dementia-Depth/dp/1449760953/ref=sr_1_1?keywords=%E2%80%8BLiving+With+Lewy+Body+Dementia%3A+One+Caregiver%27s+Personal%2C+In-Depth+Experience&qid=1564442126&s=books&sr=1-1
Aging and Elder Care: Time For Transformation
John Lord
www.cavershambooksellers.com/search/9781553224402
John Lord
www.cavershambooksellers.com/search/9781553224402
Ambiguous Loss: Learning To Live With Unresolved Grief
Pauline Boss
https://www.amazon.com/Ambiguous-Loss-Learning-Unresolved-Grief/dp/0674003810/ref=sr_1_1?keywords=Ambiguous+Loss%3A+Learning+To+Live+With+Unresolved+Grief&qid=1564442138&s=books&sr=1-
Pauline Boss
https://www.amazon.com/Ambiguous-Loss-Learning-Unresolved-Grief/dp/0674003810/ref=sr_1_1?keywords=Ambiguous+Loss%3A+Learning+To+Live+With+Unresolved+Grief&qid=1564442138&s=books&sr=1-
Through The Seasons: An Activity Book For Memory Challenged Adults And Caregivers
Cynthia Green and Joan Beloff
https://www.amazon.com/Through-Seasons-Activity-Memory-Challenged-Caregivers/dp/0801888441/ref=sr_1_1?keywords=Through+The+Seasons%3A+An+Activity+Book+For+Memory+Challenged+Adults+And+Caregivers&qid=1564442165&s=books&sr=1-1
Cynthia Green and Joan Beloff
https://www.amazon.com/Through-Seasons-Activity-Memory-Challenged-Caregivers/dp/0801888441/ref=sr_1_1?keywords=Through+The+Seasons%3A+An+Activity+Book+For+Memory+Challenged+Adults+And+Caregivers&qid=1564442165&s=books&sr=1-1
Activities For The Family Caregiver: Lewy Body Dementia: How To Engage, How To Live
Scott Silknitter, Robert Brennan and Linda Redhead
https://www.amazon.com/Activities-Family-Caregiver-Dementia-Engage/dp/1943285152/ref=sr_1_1?keywords=Activities+For+The+Family+Caregiver%3A+Lewy+Body+Dementia%3A+How+To+Engage%2C+How+To+Live&qid=1564442176&s=books&sr=1-
Scott Silknitter, Robert Brennan and Linda Redhead
https://www.amazon.com/Activities-Family-Caregiver-Dementia-Engage/dp/1943285152/ref=sr_1_1?keywords=Activities+For+The+Family+Caregiver%3A+Lewy+Body+Dementia%3A+How+To+Engage%2C+How+To+Live&qid=1564442176&s=books&sr=1-
Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia, Alzheimer's, and Parkinson's Disease
Pat Snyder
https://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?keywords=Treasures+in+the+Darkness%3A+Extending+the+Early+Stage+of+Lewy+Body+Dementia%2C+Alzheimer%27s%2C+and+Parkinson%27s+Disease&qid=1564442193&s=books&sr=1-1
Pat Snyder
https://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?keywords=Treasures+in+the+Darkness%3A+Extending+the+Early+Stage+of+Lewy+Body+Dementia%2C+Alzheimer%27s%2C+and+Parkinson%27s+Disease&qid=1564442193&s=books&sr=1-1
Lewy, Mom, and Me: A Caregiver's Story
Peggy Bushy
https://www.amazon.com/Lewy-Mom-Me-caregivers-story/dp/1537771027
Peggy Bushy
https://www.amazon.com/Lewy-Mom-Me-caregivers-story/dp/1537771027
Lewy Body Dementia: Causes, Tests and Treatment Options
Erik Stevenson MA, Deanna Miller MD, Adam Wainwright RN
https://www.amazon.com/Lewy-Body-Dementia-Treatment-Options/dp/1475192053
Erik Stevenson MA, Deanna Miller MD, Adam Wainwright RN
https://www.amazon.com/Lewy-Body-Dementia-Treatment-Options/dp/1475192053
Keeping Love Alive As Memories Fade
Deborah Barr MA , Edward G. Shaw MD, Gary Chapman PhD
https://www.amazon.ca/Keeping-Love-Alive-Memories-Fade/dp/0802414508
Deborah Barr MA , Edward G. Shaw MD, Gary Chapman PhD
https://www.amazon.ca/Keeping-Love-Alive-Memories-Fade/dp/0802414508
Love and Forgetting: A husband and wife's journey through dementia
Julie Macfie Sobol
https://www.amazon.ca/Love-Forgetting-husband-journey-dementia/dp/1927583187
Julie Macfie Sobol
https://www.amazon.ca/Love-Forgetting-husband-journey-dementia/dp/1927583187
The Last Ocean: A Journey Through Memory and Forgetting
Nicci Gerrard
https://www.amazon.ca/Last-Ocean-Journey-Through-Forgetting/dp/0525521968
Nicci Gerrard
https://www.amazon.ca/Last-Ocean-Journey-Through-Forgetting/dp/0525521968
Grief One Day at a Time: 365 Meditations to Help You Heal After Loss
Alan D. Wolfelt PhD
https://www.amazon.ca/Grief-One-Day-Time-Meditations/dp/1617222380
Alan D. Wolfelt PhD
https://www.amazon.ca/Grief-One-Day-Time-Meditations/dp/1617222380
When the Body Says No: The Cost of Hidden Stress
Gabor Maté MD
https://www.amazon.ca/When-Body-Says-No-Hidden/dp/0676973124
Gabor Maté MD
https://www.amazon.ca/When-Body-Says-No-Hidden/dp/0676973124
Sympathy & Condolences: What to Say and Write to Convey Your Support After a Loss
Alan D. Wolfelt, Ph.D.
https://www.amazon.ca/Sympathy-Condolences-Write-Convey-Support/dp/1617223050
Alan D. Wolfelt, Ph.D.
https://www.amazon.ca/Sympathy-Condolences-Write-Convey-Support/dp/1617223050
Living With Lewy's: Empowering Today's Dementia Caregiver
Amy J. Throop and Gerald S. Throop
https://www.amazon.com/Living-Lewys-Empowering-Revolutionary-Caregivers/dp/0981759300/ref=sr_1_1?keywords=Living+With+Lewy%27s%3A+Empowering+Today%27s+Dementia+Caregiver&qid=1564442148&s=books&sr=1-1
Amy J. Throop and Gerald S. Throop
https://www.amazon.com/Living-Lewys-Empowering-Revolutionary-Caregivers/dp/0981759300/ref=sr_1_1?keywords=Living+With+Lewy%27s%3A+Empowering+Today%27s+Dementia+Caregiver&qid=1564442148&s=books&sr=1-1
Medical disclaimer: Canadian Lewy Body Information does not provide medical advice. The content available on this website does not provide a diagnosis. The information herein is not a substitute for the professional judgment of a healthcare professional. The determination of the need for medical services and the types of healthcare to be provided to a patient are decisions that should be made only by a physician or other licensed health care provider. Always seek the advice of a physician or other qualified healthcare provider with any questions you have regarding a medical condition.