CLBDI Literature & Original Content
CLBDI Advocacy Letter Template
We recently got together with our advisory board to draft a letter that sheds light on the many issues facing dementia patients, families, and carers in Ontario and across our country. The intention was to make this available to everyone so that anyone who is interested can start the conversation about the current state of dementia care and what is likely to be coming shortly.
Click the link below to read it and get the plain text version, the Word document, and the PDF of the letter. Use it as is or edit it and make it your own.
CLBDI Advocacy Letter 2024.
Did you use our letter template? Have you been in contact with local, provincial, and federal politicians and want to share some insight into the conversation? Send us an email ([email protected]) and let us know.
Click the link below to read it and get the plain text version, the Word document, and the PDF of the letter. Use it as is or edit it and make it your own.
CLBDI Advocacy Letter 2024.
Did you use our letter template? Have you been in contact with local, provincial, and federal politicians and want to share some insight into the conversation? Send us an email ([email protected]) and let us know.
CLBDI Brochure
We are so excited to share a printable PDF version of our two-sided CLBDI pamphlet. The PDF is print ready and includes crop marks and bleed. The sizing for print is 11 x 8.5 inches. The pamphlet features the CLBDI story, some basic information about Lewy Body Dementia, the symptoms of Lewy Body Dementia, and some helpful links to get you started on your LBD journey as a carer or someone newly diagnosed.
Download it here.
If you are interested in ordering some in bulk for your workplace or live event, contact us via any of the contact forms on the site or the email button on the bottom of this page. We're happy to facilitate a large order with our local print connection and work out delivery within the Waterloo Region.
Download it here.
If you are interested in ordering some in bulk for your workplace or live event, contact us via any of the contact forms on the site or the email button on the bottom of this page. We're happy to facilitate a large order with our local print connection and work out delivery within the Waterloo Region.
CLBDI YouTube Videos
Canadian LBD Information's First Online Webinar
This short webinar aims to introduce you to Canadian Lewy Body Dementia Information and shine some light on Lewy Body Dementia itself. We also cover the history and possible symptoms of the disease, tips on how you can help your Loved One with LBD, supporting yourself as a carer, building a care team, and more.
This short webinar aims to introduce you to Canadian Lewy Body Dementia Information and shine some light on Lewy Body Dementia itself. We also cover the history and possible symptoms of the disease, tips on how you can help your Loved One with LBD, supporting yourself as a carer, building a care team, and more.
CLBDI Talks Interview Series - Episode 1: Dr. Stephen Pasternak
Welcome to the first of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we were joined by cognitive neurologist and CLBDI Advisory Board member Dr. Stephen Pasternak (SB, MD CM, PhD, FRCPC) to talk about what drew him to neurology, the state of Lewy Body Dementia research, how our fund-raising efforts will be used in the future, and the importance of taking care of yourself as a care partner.
Thanks again to Dr. Pasternak for taking the time to sit down and chat with us.
Welcome to the first of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we were joined by cognitive neurologist and CLBDI Advisory Board member Dr. Stephen Pasternak (SB, MD CM, PhD, FRCPC) to talk about what drew him to neurology, the state of Lewy Body Dementia research, how our fund-raising efforts will be used in the future, and the importance of taking care of yourself as a care partner.
Thanks again to Dr. Pasternak for taking the time to sit down and chat with us.
CLBDI Talks Interview Series - Episode 2: Natalia Busch RN
Welcome back, Lewy Warriors! We're ending 2023 with the second episode of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
This episode, we were joined by Natalia Busch RN to talk about her job at Sunnyside Home LTC, their recent shift to the Butterfly Approach to long-term caring and what that is, preparing for long-term care in Ontario, and more. Want to learn more about Sunnyside Home and the Butterfly Approach? Check out the links we've posted in the comments!
Thanks again to Natalia for joining us.
Welcome back, Lewy Warriors! We're ending 2023 with the second episode of our "CLBDI Talks" interview series! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
This episode, we were joined by Natalia Busch RN to talk about her job at Sunnyside Home LTC, their recent shift to the Butterfly Approach to long-term caring and what that is, preparing for long-term care in Ontario, and more. Want to learn more about Sunnyside Home and the Butterfly Approach? Check out the links we've posted in the comments!
Thanks again to Natalia for joining us.
CLBDI Talks Interview Series - Episode 3: Janet Johnstone
Hello, Lewy Warriors! Welcome to the first episode of our "CLBDI Talks" interview series in 2024! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we sat down with author, caretaker, artist, and Lewy Warrior Janet Johnstone to talk about her "Lewy Who?" book series, her and her husband's journey with Lewy Body Dementia, caretaking, how art connects with dementia, and more. It was a wonderful conversation and we sincerely thank Janet for taking the time to speak with us.
Want to read her books? Check out the LBD Resources page on our website.
Hello, Lewy Warriors! Welcome to the first episode of our "CLBDI Talks" interview series in 2024! This series will be a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
For this episode, we sat down with author, caretaker, artist, and Lewy Warrior Janet Johnstone to talk about her "Lewy Who?" book series, her and her husband's journey with Lewy Body Dementia, caretaking, how art connects with dementia, and more. It was a wonderful conversation and we sincerely thank Janet for taking the time to speak with us.
Want to read her books? Check out the LBD Resources page on our website.
CLBDI Talks Interview Series - Episode 4: David Malina
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by CLBDI Advisory Board member and pastor at Christ Lutheran Church in Waterloo, David Malina, to talk about the positives of faith-based support systems, little-known ways that churches can offer support to patients and carers, his experience with dementia, and his time with CLBDI. It was a wonderful and warm conversation and we hope you will check it out, regardless of your faith.
Thanks again to Pastor David for sitting down with us!
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by CLBDI Advisory Board member and pastor at Christ Lutheran Church in Waterloo, David Malina, to talk about the positives of faith-based support systems, little-known ways that churches can offer support to patients and carers, his experience with dementia, and his time with CLBDI. It was a wonderful and warm conversation and we hope you will check it out, regardless of your faith.
Thanks again to Pastor David for sitting down with us!
CLBDI Talks Interview Series - Episode 5: Michelle Martin
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the executive director of the Alzheimer Society Waterloo-Wellington, Michelle Martin, to talk about the Alzheimer Society, how they operate, what they offer people in the Waterloo Region and across Canada, advocacy, education, support, and so much more. We also discuss their two Landmark Studies on dementia and the future of the disease in Canada.
Huge thanks to Michelle Martin for taking the time to speak with us.
You can learn more about the Alzheimer Society Waterloo-Wellington here:
alzheimer.ca/ww/en
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the executive director of the Alzheimer Society Waterloo-Wellington, Michelle Martin, to talk about the Alzheimer Society, how they operate, what they offer people in the Waterloo Region and across Canada, advocacy, education, support, and so much more. We also discuss their two Landmark Studies on dementia and the future of the disease in Canada.
Huge thanks to Michelle Martin for taking the time to speak with us.
You can learn more about the Alzheimer Society Waterloo-Wellington here:
alzheimer.ca/ww/en
CLBDI Talks Interview Series - Episode 6: Carol Schmidt
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the founder of Canadian Lewy Body Dementia information, Carol Schmidt, to celebrate five years of CLBDI and take a look back on our amazing journey thus far. We also discuss the future of CLBDI and the ways we hope to make an impact, share some of our own advice, and thank all the wonderful people we’ve met along the way for their ongoing support. It’s been an exciting and inspiring five years and we can’t wait to see where CLBDI goes from here. We close things out with an important message from cognitive neurologist, advisory board member, and former guest - Dr. Stephen Pasternak.
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the founder of Canadian Lewy Body Dementia information, Carol Schmidt, to celebrate five years of CLBDI and take a look back on our amazing journey thus far. We also discuss the future of CLBDI and the ways we hope to make an impact, share some of our own advice, and thank all the wonderful people we’ve met along the way for their ongoing support. It’s been an exciting and inspiring five years and we can’t wait to see where CLBDI goes from here. We close things out with an important message from cognitive neurologist, advisory board member, and former guest - Dr. Stephen Pasternak.
CLBDI Talks Interview Series - Episode 7: Dr. Stephen Pasternak (Part Two)
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more
Cognitive neurologist Dr. Stephen Pasternak joins us again to discuss Lewy Body Dementia, the power of proactivity, the importance of finding support, and the dangers of caretaker burnout. In this episode, we discuss some of his recent Lewy Body Dementia research trials, the surprising and hopeful new research opportunities stemming from the potential overlap of the neuropathologies of LBD and Alzheimer’s, and how, with enough support, this could lead to a better understanding of the disease and possible treatments.
Following the tragic passing of actor Gene Hackman, Dr. Pasternak reaffirms the importance of having a proper support system and the dangers of isolating yourself as a caretaker. We also discuss the benefits of building a community, breaking down the stigma around dementia and dementia care, the power of proactivity and planning, and the importance of dementia advocacy. With the rising number of dementia cases in Canada, it’s crucial to understand that you’re not alone as a carer and how important it is to start planning early.
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more
Cognitive neurologist Dr. Stephen Pasternak joins us again to discuss Lewy Body Dementia, the power of proactivity, the importance of finding support, and the dangers of caretaker burnout. In this episode, we discuss some of his recent Lewy Body Dementia research trials, the surprising and hopeful new research opportunities stemming from the potential overlap of the neuropathologies of LBD and Alzheimer’s, and how, with enough support, this could lead to a better understanding of the disease and possible treatments.
Following the tragic passing of actor Gene Hackman, Dr. Pasternak reaffirms the importance of having a proper support system and the dangers of isolating yourself as a caretaker. We also discuss the benefits of building a community, breaking down the stigma around dementia and dementia care, the power of proactivity and planning, and the importance of dementia advocacy. With the rising number of dementia cases in Canada, it’s crucial to understand that you’re not alone as a carer and how important it is to start planning early.
CLBDI Talks Interview Series - Episode 8: Norma Loeb
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the Founder and Executive Director of the Lewy Body Dementia Resource Center, Norma Loeb! Join us for a truly wonderful conversation with Norma about her career and accomplishments with the LBDRC, the personal experiences that led her to start the platform, the challenges facing LBD patients and caregivers today, the new LBD-related documentary "Facing The Wind," and much more.
We want to express our heartfelt gratitude to Norma for taking the time to speak with us and for sharing her insights, stories, experiences, and expertise.
Visit the Lewy Body Dementia Resource Center website here: https://lewybodyresourcecenter.org
Find the Lewy Body Dementia Resource Center on Instagram here: https://www.instagram.com/lewybodyny/
Learn more about "Facing The Wind" and rent/buy the film digitally here: https://facingthewindfilm.com
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by the Founder and Executive Director of the Lewy Body Dementia Resource Center, Norma Loeb! Join us for a truly wonderful conversation with Norma about her career and accomplishments with the LBDRC, the personal experiences that led her to start the platform, the challenges facing LBD patients and caregivers today, the new LBD-related documentary "Facing The Wind," and much more.
We want to express our heartfelt gratitude to Norma for taking the time to speak with us and for sharing her insights, stories, experiences, and expertise.
Visit the Lewy Body Dementia Resource Center website here: https://lewybodyresourcecenter.org
Find the Lewy Body Dementia Resource Center on Instagram here: https://www.instagram.com/lewybodyny/
Learn more about "Facing The Wind" and rent/buy the film digitally here: https://facingthewindfilm.com
CLBDI Talks Interview Series - Episode 9: Mary Lou Falcone
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by author, Lewy Warrior, and member of the Lewy Body Dementia Resource Center's Board of Directors, Mary Lou Falcone. Together, we have a wonderful and insightful conversation about her recently released memoir, "I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia", her time caring for her late husband Nicky Zann, her new chapter as a LBD advocate, connecting with Norma and the LBDRC, "Facing The Wind", art and music therapy, and so much more.
A sincere thank you to Mary Lou for taking the time to speak with us.
Check out her website and order her book here: https://maryloufalcone.com
Visit the Lewy Body Dementia Resource Center website here: https://lewybodyresourcecenter.org
Learn more about "Facing The Wind" and rent/buy the film digitally here: https://facingthewindfilm.com
Hello, Lewy Warriors! The "CLBDI Talks" interview series is a collection of short videos where we sit down for a chat with various medical professionals, care partners, community members, and other Lewy Warriors to talk about Lewy Body Dementia, caring for your Loved One, and more.
In this episode, we are joined by author, Lewy Warrior, and member of the Lewy Body Dementia Resource Center's Board of Directors, Mary Lou Falcone. Together, we have a wonderful and insightful conversation about her recently released memoir, "I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia", her time caring for her late husband Nicky Zann, her new chapter as a LBD advocate, connecting with Norma and the LBDRC, "Facing The Wind", art and music therapy, and so much more.
A sincere thank you to Mary Lou for taking the time to speak with us.
Check out her website and order her book here: https://maryloufalcone.com
Visit the Lewy Body Dementia Resource Center website here: https://lewybodyresourcecenter.org
Learn more about "Facing The Wind" and rent/buy the film digitally here: https://facingthewindfilm.com
Medical disclaimer: Canadian Lewy Body Information does not provide medical advice. The content available on this website does not provide a diagnosis. The information herein is not a substitute for the professional judgment of a healthcare professional. The determination of the need for medical services and the types of healthcare to be provided to a patient are decisions that should be made only by a physician or other licensed health care provider. Always seek the advice of a physician or other qualified healthcare provider with any questions you have regarding a medical condition.