Online Medical Material & Dementia Resources

The Canadian Charter of Rights for People with Dementia​ (Alzheimer Society Canada) - https://alzheimer.ca/en/take-action/change-minds/canadian-charter-rights-people-dementia​
Find A Seniors Active Living Centre Program Near You - www.ontario.ca/page/find-seniors-active-living-centre-program-near-you
Navigating The Path Forward For Dementia In Canada (Landmark Study Vol. 1) - https://alzheimer.ca/en/research/reports-dementia/landmark-study-report-1-path-forward
​The Many Faces Of Dementia In Canada (Landmark Study Vol. 2) - alzheimer.ca/en/the-many-faces-of-dementia-in-canada-landmark-study-volume-2
International Lewy Body Dementia Conference 2022 (Video Playlist) - https://youtube.com/playlist?list=PLGS6p-MbzJgs7qNCWLupw69-qN6IWwL9L
I Live With Dementia. Let Me Help You Understand. - https://ilivewithdementia.ca/
LBDA Lewy Body Care Brief - https://www.lbda.org/sites/default/files/care_brief_be_aware_of_polypharmacy_rd_3-18.pdf?fbclid=IwAR1wEvbz7Fh3mCwxjnrnulOPolDrGcnn-Nz_-kgiaErDxAmyumWLSdi7neM
The Canadian Consortium on Neurodegeneration in Aging -https://ccna-ccnv.ca/​
Ministerial Advisory Board on Dementia Membership List - https://www.canada.ca/en/public-health/corporate/mandate/about-agency/external-advisory-bodies/ministerial-advisory-board-dementia/membership-list.html
​The Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025
​Alzheimers Association - https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/lewy-body-dementia
​"The Terrorist Inside my Husband's Brain." - https://n.neurology.org/content/87/13/1308
Alzheimers Society of Canada - https://alzheimer.ca/sites/default/files/files/national/other-dementias/other_dementias_lewy_body_e.pdf
​National Institute of Aging (USA) - https://www.nia.nih.gov/health/what-lewy-body-dementia
Memory Care Facilities (USA) - https://www.memorycarefacilities.net/
Dementia Support - http://www.dementiasupport.ca/web/alzheimers-disease-and-dementia/what-is-lewy-body-dementia/
Lewy Body Dementia: Information For Patients, Families, and Professionals - https://www.lbda.org/sites/default/files/lewy_body_dementia-2018_update-final.pdf
The Complete Guide To Lewy Body Dementia (LBDRC) - https://lewybodyresourcecenter.org/lewy-body-dementia-guide-symptoms-diagnosis-treatment/​
10 Things You Should Know About LBD - https://www.lbda.org/go/10-things-you-should-know-about-lbd
Lewy Who? (Pamphlet) - https://www.lbda.org/sites/default/files/78303_lbda_web-view_1024x768.pdf
Three Minute LBD Test - https://www.medscape.com/viewarticle/854577#vp_1
Three Minute Test Detects Parkinson's + Lewy Body Dementia - https://parkinsonsnewstoday.com/2015/11/02/3-minute-test-detects-parkinsons-lewy-body-dementia/
Sound Expression Speech Therapy (Trusted 519 Local) - https://www.soundexpression.ca/
Aging Care - ​https://www.agingcare.com
​Webinar Series On Parkinson's and Parkinsonian Symptoms - https://www.youtube.com/playlist?list=PLkPIhQnN7cN6dAJZ5K5zQzY84btUTLo_C
Lewy Body Dementia Podcast by Timothy Hudson - soundcloud.com/lewy-body-dementia/
Lewy Body Dementia: The State Of The Science by LBDA - https://www.lbda.org/lbd-state-of-the-science/
Robin's Wish Events - https://lewybodyresourcecenter.org/robins-wish-events/
Tips For Coping With Sundowning - https://www.nia.nih.gov/health/tips-coping-sundowning
SUNDOWNING: WHAT IT IS AND HOW YOU CAN HELP - https://lewybodyresourcecenter.org/sundowning-what-it-is-and-how-you-can-help/
Sundowning: Late-Day Confusion - https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/expert-answers/sundowning/
The Best Medical Alert Systems - health.com/health-reviews/the-best-medical-alert-systems
Aging In Place: Why You Or A Loved One May Want To Grow Older At Home - health.com/home/aging-in-place-why-you-or-a-loved-one-growing-older-at-home
“I Am The Very Same Person That You Knew Before”: How To Talk To a Person With Dementia - https://www.beingpatient.com/stigma-of-dementia-communication-lessons/
Ontario Brain Institute: Public Talks Archive - ​https://braininstitute.ca/resources/obi-public-talks
Mayo Clinic Connect: Dementia Hub - https://connect.mayoclinic.org/blog/dementia-hub/
7 Signs of Caregiver Burnout - https://www.verywellhealth.com/signs-of-caregiver-burnout-97981 
Four Little-Known Facts About Lewy Body Dementia - ​https://lewybodyresourcecenter.org/four-little-known-facts-about-lewy-body-dementia/
The Lewy Body Society's (YouTube Channel) - https://www.youtube.com/channel/UC2cHAD_mF6rCX8bA8pnoSdw
Dementia Careblazers (YouTube Channel) - ​https://www.youtube.com/c/DementiaCareblazers
LBDAtv (YouTube Channel) - https://www.youtube.com/user/LBDAtv
Teepa Snow's Positive Approach To Care (YouTube Channel) - https://www.youtube.com/@teepasnowvideos
Alzheimer Society Canada Research and Reports  - https://alzheimer.ca/en/research/reports-dementia​
Dementia Concerns and Considerations: A CADTH Panel of People With Lived Experience (Report) -https://www.cadth.ca/dementia-concerns-and-considerations-cadth-panel-people-lived-experience
"Sharing & Caring: How To Share the Work of Family Caregiving" from Being Patient -https://www.beingpatient.com/family-caregivers-strategies/​
"Conversation Starters for People With Dementia" - https://www.verywellhealth.com/conversation-starters-for-dementia-97962
"Keeping A Dementia Journal Makes Caregiving Easier: 7 Things To Track" - https://dailycaring.com/keeping-a-dementia-journal-makes-caregiving-easier-7-things-to-track/​
"Please Don’t Stop the Music: 3 Ways to Use Music As Therapy Dementia Care" - https://www.beingpatient.com/how-to-use-music-therapy-in-dementia-care/​
Views From Within: A Lewy Body Video Series - https://lewybodyresourcecenter.org/views-from-within-a-lewy-body-video-series/​
Lewy Body Life (Podcast) - https://lewybodylife.com/episodes/
Dementia Friendly Communities Ontario - https://alzheimer.ca/on/en/take-action/become-dementia-friendly/dementia-friendly-communities-ontario​
​Finding Your Way Ontario - http://findingyourwayontario.ca/​
​The New Dementia Learning Hub - dementiahelp.ca/dementia-learning-hub/
The Ontario Caregivers Organization - ontariocaregiver.ca/
The Petro‑Canada CareMakers Foundation - https://www.caremakers.ca/
​The Lewy Learning Center (LBDA) - https://lewy-learning-center.thinkific.com/
Driving With Dementia (The Alzheimer Societ of Canada) - ​alzheimer.ca/en/help-support/im-living-dementia/managing-changes-your-abilities/driving-dementia?gad_source=1&gclid=EAIaIQobChMI-L6yxPaZhAMVWQCtBh0Nvw3wEAAYAiAAEgK5QfD_BwE
Crossroads: Navigating Driving and Dementia (Podcast) - ​www.cabhi.com/podcast/crossroads-navigating-driving-and-dementia/?gclid=EAIaIQobChMI-L6yxPaZhAMVWQCtBh0Nvw3wEAAYBCAAEgI0TfD_BwE
​Dementia Dialogue (Podcast) - ​www.dementiadialogue.ca/
Dementia And Driving Tips (American) - https://www.wvpersonalinjury.com/dementia-and-driving/
Living Safely Independently (The Alzheimer Society Canada) - alzheimer.ca/en/help-support/im-living-dementia/living-well-dementia/living-safely-independently#Strategies_to_help_you_stay_safe​
Youth In Action: A Toolkit For Young Dementia Supporters (The Alzheimer's Society Canada) -https://alzheimer.ca/on/en/take-action/Young_Dementia_Supporter_Toolkit
Ambroxol as a Treatment for Parkinson Disease Dementia (JAMA Neurology/Dr. Pasternak) -https://jamanetwork.com/journals/jamaneurology/article-abstract/2835760
"By Us For Us Guides" (​The Schlegel-UW Research Institute For Aging) - https://the-ria.ca/resources/by-us-for-us-guides/

LBD & Dementia Websites

The Lewy Body Society - https://www.lewybody.org
The Lewy Body Resource Center  - https://lewybodyresourcecenter.org/
Lewy Body Dementia Association - https://www.lbda.org/ 
Lewy Body Dementia Canada - http://www.lewybodydementia.ca/
Alzheimer Society Canada - https://alzheimer.ca/en​
​Alzheimer Society Waterloo Wellington - https://alzheimer.ca/ww/
The Dementia Society Ottawa and Renfrew County - https://dementiahelp.ca/
Dementia Australia - https://www.dementia.org.au/research
Dementia Advocacy Canada - https://dementiacanada.com/
Dementia Together - https://dementiatogether.org/
The Purple Sherpa - https://thepurplesherpa.org/
Forward with Dementia - https://www.forwardwithdementia.org/ca-en/
Dementia Carers Canada - https://www.dementiacarers.ca/
Lewy Body Ireland - https://lewybodyireland.org/
Lewy Body Dialogue - https://www.lewybodydialogue.com/
Lewy Body International - ​https://lewybodyint.org/
​The Larry Gross Lewy Body Awareness Foundation - https://lewybodyawareness.org/
​​Dementia Wellness Canda - dementiawellness.com/
​​​​The Schlegel-UW Research Institute For Aging - https://the-ria.ca/
Race Against Dementia - ​www.raceagainstdementia.com/

Facebook Groups

Canadian LBD Information - https://www.facebook.com/CanadianLBDInfo/
Alzheimer Society Canada - https://www.facebook.com/AlzheimerCanada/
​Alzheimer Society Waterloo Wellington - https://www.facebook.com/alzsocww/
Lewy Body Dementia Canada - https://www.facebook.com/Lewy.ca/
Lewy Body Dementia Association - https://www.facebook.com/LewyBodyDementia/
Lewy Body Resource Center - ​https://www.facebook.com/lewybodyNY/
The Purple Sherpa - https://www.facebook.com/ThePurpleSherpa/
Forward with Dementia - https://www.facebook.com/ForwardwithDementiaCA
Dementia Awareness. Every Day. - ​https://www.facebook.com/dementia.awareness.every.day/
Dementia Advocacy Canada - ​https://www.facebook.com/DementiaCanada
LBD Association Care Partner Support Group - https://www.facebook.com/groups/LBDACarePartnerSupportGroup/
​The Dementia Society Ottawa and Renfrew County - ​https://www.facebook.com/TheDementiaSociety
The Schlegel-UW Research Institute For Aging - https://www.facebook.com/SchlegelUWRIA
Race Against Dementia - www.facebook.com/racingdementia
Beyond Lewy: A Group For Grieving Adult Children (LBDA) - www.facebook.com/groups/lbdabeyondlewy

Latest LBD News

• "London research: European cough medicine may aid Parkinson's patients" - https://lfpress.com/news/local-news/european-cough-medicine-slows-dementia-parkinsons-disease-patients
• "A cough medicine could hold new hope in the fight against dementia; research" - https://www.ctvnews.ca/london/article/a-cough-medicine-could-hold-new-hope-in-the-fight-against-dementia-research/
• "The New Program Connecting People with Dementia to Community Supports" (DREAM)​ - www.healthinsight.ca/advocacy/patient-access-2024/the-new-program-connecting-people-with-dementia-to-community-supports/
• "Province makes pair of funding announcements for primary care teams in Waterloo Region" - kitchener.citynews.ca/2024/02/16/province-make-pair-of-funding-announcements-for-primary-care-teams-in-region/
• "​What My Father’s Struggle With Dementia Taught Me About Being Human" - ​https://community.thriveglobal.com/dementia-memory-loss-family-father-care/
• "How to confront a parent's Dementia" - https://www.bbc.com/future/article/20220907-caring-for-a-parent-with-dementia
• "Care for people living with Dementia in Guelph could improve" - https://www.guelphtoday.com/local-news/care-for-people-living-with-dementia-in-guelph-could-improve-6011349?utm_source=Email_Share&utm_medium=Email_Share&utm_campaign=Email_Share
• "The last things a caregiver for a loved one needs to hear – and the first" - https://www.theglobeandmail.com/life/health-and-fitness/health-advisor/the-last-things-a-caregiver-for-a-loved-one-needs-to-hear-and-the-first/article29272414/
• "Local filmmaker depicts the struggles of dementia in 'Wooden Spoon'" - https://kitchener.citynews.ca/local-news/local-filmmaker-depicts-the-struggles-of-dementia-in-wooden-spoon-5444561?utm_source=Email&utm_medium=Email&utm_campaign=Email
• "'It’s important to know what’s out there to help': Woman shares late husband's Parkinson's story" - https://www.barrietoday.com/local-news/its-important-to-know-whats-out-there-to-help-woman-shares-late-husbands-parkinsons-story-5251239
• "Remembering Bob Schmidt, a Lewy Warrior" - https://www.therecord.com/life/2022/02/07/remembering-bob-schmidt-a-lewy-warrior.html
• "What Is Lewy Body Dementia? Frank Bonner of 'WKRP in Cincinnati' Dies of Complications" - https://www.newsweek.com/lewy-body-dementia-symptoms-explained-actor-frank-bonner-dies-1601855
• "A Closer Look at the Disease That Devastated Robin Williams' Life" - https://www.aarp.org/entertainment/movies-for-grownups/info-2020/robin-williams-lewy-body-dementia.html
• "Dementia dimensions: Affected Japan man draws his hallucinations to alter attitudes" - https://mainichi.jp/english/articles/20200219/p2a/00m/0na/025000c
• "London researchers may be one step closer to better dementia diagnosis" - ​https://lfpress.com/news/local-news/london-researchers-may-be-one-step-closer-to-better-dementia-diagnosis
• "Ohio State researchers identify new biomarkers that differentiate Lewy body dementia from Alzheimer’s and Parkinson’s​" - https://wexnermedical.osu.edu/departments/innovations/neuronews/lewy-body
• "Apathy may precede dementia years before other symptoms" - www.medicalnewstoday.com/articles/apathy-may-precede-dementia-years-before-other-symptoms
• "Signs and symptoms of Lewy body dementia" - https://medicalxpress.com/news/2020-09-symptoms-lewy-body-dementia.html
• "What’s Up Doc column: Is Lewy body dementia the same thing as Alzheimer’s?​" - https://www.ottawaherald.com/lifestyle/20200929/whats-up-doc-column-is-lewy-body-dementia-same-thing-as-alzheimers
• "Tom Seaver, like Robin Williams, had Lewy body dementia, but what is this strange illness? A neurologist explains" - https://theconversation.com/tom-seaver-like-robin-williams-had-lewy-body-dementia-but-what-is-this-strange-illness-a-neurologist-explains-145596
• "Robin Williams' widow Susan opens up about last days" - https://www.rte.ie/entertainment/2020/0902/1162721-robin-williams-widow-susan-opens-up-about-last-days/?fbclid=IwAR0p20hOVCZR9epytl7E2A-3AA43j4iPDFTB980sCHC47EWLJctOBHsfwBE
• "Dementia diet - the best type of vegetable to protect against Alzheimer's". - https://www.express.co.uk/life-style/health/1321981/dementia-diet-alzheimers-symptoms-signs-leafy-green-vegetables
• "New Robin Williams Documentary Sheds Light on Lewy Body Dementia". - https://www.newsweek.com/new-robin-williams-documentary-shows-struggles-dementia-1524286
• "Knowing the signs of Lewy Body Dementia may help speed diagnosis". - https://news.yahoo.com/knowing-signs-lewy-body-dementia-180645217.html
• "LBD and Coronavirus." - www.lbda.org/Coronavirus
• "Canadians living with dementia break silence on stigma in Alzheimer Society campaign: I live with dementia. Let me help you understand." - https://www.newswire.ca/news-releases/canadians-living-with-dementia-break-silence-on-stigma-in-alzheimer-society-campaign-i-live-with-dementia-let-me-help-you-understand--821169286.html
• "The Novascotian: Dartmouth Couple Copes With Lewy Body Dementia" - https://www.saltwire.com/lifestyles/local-lifestyles/the-novascotian-dartmouth-couple-copes-with-lewy-body-dementia-455533/
• "Here’s what you need to know about dementia, and ways to reduce your risk" - https://vancouversun.com/sponsored/news-sponsored/heres-what-you-need-to-know-about-dementia-and-ways-to-reduce-your-risk
• "Lewy Body Dementia Association Announces Recipients of the Dorothy Mangurian Volunteer of the Year Award" - https://www.prnewswire.com/news-releases/lewy-body-dementia-association-announces-recipients-of-the-dorothy-mangurian-volunteer-of-the-year-award-300904438.html
• "Dementia symptoms: Early sign of Lewy body dementia when you sleep - are you at risk?"  - https://www.express.co.uk/life-style/health/1162771/dementia-symptoms-early-signs-lewy-body-sleep-difficulties-help-causes
• "Ontario judge turns to expressive art after diagnosis of Lewy Body Dementia." - https://www.ctvnews.ca/health/ontario-judge-turns-to-expressive-art-after-diagnosis-of-lewy-body-dementia-1.4195369
• "Potential Blood Test For Dementia Exciting News for Doctors, Patients..." - globalnews.ca/news/5499597/potential-blood-test-for-dementia-exciting-news-for-doctors-patients-says-manitoba-expert/
• "The Terrorist Inside My Husband's Brain." - https://n.neurology.org/content/87/13/1308​
• "Advances In The Global Search For Blood Markers For Alzheimer's Disease And Other Dementias": https://www.newswire.ca/news-releases/advances-in-the-global-search-for-blood-markers-for-alzheimer-s-disease-and-other-dementias-828085629.html
• "'First step': Canada's $50M national dementia strategy unveiled.": https://www.ctvnews.ca/health/first-step-canada-s-50m-national-dementia-strategy-unveiled-1.4470397
• "The Lewy Body Dementia Resource Center is Hosting an Exclusive Private Screening and Reception of Robin's Wish at Lincoln Center in New York": https://www.prnewswire.com/news-releases/the-lewy-body-dementia-resource-center-is-hosting-an-exclusive-private-screening-and-reception-of-robins-wish-at-lincoln-center-in-new-york-300883028.html
• "Health Care Teams Turn To CBD Oil To Treat Difficult Symptoms Of Dementia." https://www.ctvnews.ca/health/health-care-teams-turn-to-cbd-oil-to-treat-difficult-symptoms-of-dementia-1.4499752
• "Baseball Great Dies of Lewy Body Dementia: So, what is the disease that took Bill Buckner's life?":
  https://www.medpagetoday.com/blogs/celebritydiagnosis/80289​

Grief and Loss

Center For Loss and Life Transition - https://www.centerforloss.com/
Help Guide: Coping With Grief And Loss - https://www.helpguide.org/articles/grief/coping-with-grief-and-loss.htm
CMHA: Understanding And Coping With Loss and Grief -https://ontario.cmha.ca/documents/understanding-and-coping-with-loss-and-grief/