March 2025 - Celebrating over one hundred thousand dollars raised for LBD research, the CLBDI Talks video playlist and our next guest, springtime plans, and more...

Good afternoon, Lewy Warriors!

March has come to an end and we're here to update you on all things CLBDI. Before we get into the big news, we wanted to let everyone know that we are almost completely sold out of our CLBDI winter hats and they will soon be gone. If you'd like to snag one for next fall/winter, now is the time to do so! We will be donating the funds raised from the hats throughout April, so you can still add to the pot. Visit the Community page or send us an email to order yours today.

Now, for the exciting news! We're absolutely over the moon to announce that we've surpassed one hundred thousand dollars in total donations to LBD research at the University of Western Ontario. In fact, the new total is actually ten thousand dollars more! We've raised an astounding $110,083.05 together. It's truly incredible what we've been able to do and we are endlessly grateful to our community and supporters for helping us get to where we are. The money goes directly to Dr. Pasternak's LBD research in Ontario and will be used to help better understand and treat the disease. As our founder always says, "Merci mille fois!" We cannot even begin to say thank you enough to everyone who has donated. We're floored by the generosity of the people in our community and we appreciate every single person who has donated their time, energy, money, and support to CLBDI over the years. We cannot wait to see where we go from here.

Speaking of Dr. Pasternak, he has graciously given us some of his time to talk about LBD, his research, and issues facing caretakers and patients alike in the new episode of CLBDI Talks. Due to some technical and scheduling difficulties, the episode did not release before this was written but it will be available by the end of next week. To make it easier to watch every episode and stay up to date, we've also created the "CLBDI Talks: Full Series Playlist" on our Youtube channel. We've got some exciting guests planned for the year and can't wait to share more video content with you.

You can find that playlist by clicking this link: www.youtube.com/playlist?list=PLXPk1oLipMXTfHk8fUJKEPgHa7qQe-4-t

Speaking of content, we are hoping to visit Dr. Pasternak and the folks at the University of Western Ontario in the near future and will be filming some of our visit. We hope to give you a deeper insight into the research, the team, and where your donations are going and share a peek behind the scenes of CLBDI. We also recently got in touch with the team behind "Facing The Wind", a documentary that explores the challenges faced by LBD patients and carers, and hope to do collaborate with them in the coming year. We plan to connect more with various programs, politicians, and networking opportunities across Ontario this year to build our presence and have our message heard. We've learned that we are far stronger when we connect and work together.

You can rent "Facing The Wind" online via Vimeo by clicking this link: vimeo.com/ondemand/facingthewind

By the end of April, we will have announced the next Loonie Loops walk in Waterloo as well as some other planned community events (both online and in person). We are excited to get out in our community, advocate for and meet with Lewy Warriors, and create some awareness about Lewy Body Dementia and CLBDI this year. We will be announcing events on our Facebook page first, so be sure to give us a like and a follow to get the news first.

Lastly, we wanted to send out a belated Happy Birthday message to our founder Carol. She celebrated her 85th birthday this past month. Can you believe it?! She is a prime example of someone driven to do good in the world and she shows us all that you can make a difference in your community at any age. She is a fierce Lewy Warrior, through and through. CLBDI wouldn't exist without her and we're proud to know her. We hope she had a wonderful birthday and are wishing her the best on her next trip around the sun.

We hope everyone had a wonderful March and we wish those who celebrate an early Happy Easter. We'll see you in a month!

Best,
​Joe